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Author Topic: National Fibromyalgia Association Epidemiological Study Results Released  (Read 3002 times)
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« on: April 21, 2007, 01:20:20 pm »

National Fibromyalgia Association Epidemiological Study Results Released

Upcoming National Fibromyalgia Awareness Day on May 12

The largest online survey gives “snapshot’ of over 3,000 fibromyalgia patients






 Morning stiffness, fatigue, non-restorative sleep, pain, low back pain, concentration, and memory “fog” were among the most common problems reported by people with fibromyalgia (FM), according to the results of an internet survey conducted by the National Fibromyalgia Association (NFA) in which over 3,000 people with fibromyalgia responded in less than 3 days.

 


The survey also reported that when it came to out-of-pocket expenses related to the management of their fibromyalgia symptoms, 74% of responders spend between $100 and $500 per month on over-the-counter products; 61% spend between $100 and $500 per month on prescription medications.


The survey is the first of its kind, giving a “snapshot” of people with fibromyalgia. Experts say the results can be used to identify significant issues for further research. “The dramatic response to this survey highlights a great need for more in-depth research to improve the diagnosis and treatment options for people with fibromyalgia,” said Lynne Matallana, president and founder of the National Fibromyalgia Association, the largest FM nonprofit organization in the world; its mission is to develop and execute programs dedicated to improving the quality of life for people with FM.

 


Approximately 6 to 10 million people are afflicted with fibromyalgia in the U.S., with a female to male ratio of about 9:1, according to the National Fibromyalgia Association.

 


A vast majority of the respones from the survey were from the U.S.;46 responses came from 12 countries outside the U.S. The respondents were predominantly middle-aged Caucasian females, 75 percent of whom had experienced FM symptoms for more than 4 years. Only 3.2 percent of the responders were male. The age rage of all responders were between 17 to 77 years old.

 


Other survey results included:

64% were currently married
13.6 % had a household income of less than $20,000
21.7 % had a household income of over $80,000
63% reported lower back pain
47% reported recurrent headaches
40% reported chronic fatigue
Symptom management interventions perceived to be most effective included:

Rest
Heat modalities
Prescription pain medications
Prescription antidepressants
Prescription sleep medications
Prayer
Massage
Pool therapy
Written by the study’s principal authors and investigators: Robert Benett, M.D.; Jessie Jones, PhD, FACSM; Dennis Turk, PhD; I. Jon Russell, M.D.; and Lynne Matallana, the complete results were published in the March 2007 issue of BMC Musculoskeletal Disorders, an open-access journal publishing original peer-reviewed research articles on all aspects of the prevention, diagnosis and management of musculoskeletal and associated disorders, as well as related molecular genetics, pathophysiology, and epidemiology.



 

 National Fibromyalgia Association

2200 N. Glassell St., Suite A, Orange, CA 92865

Phone: 714.921.0150 Fax: 714.921.6920[/size
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