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Author Topic: October 1-31 Lupus Awareness Month  (Read 7428 times)
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« on: September 30, 2007, 04:52:51 pm »

CandleSmilie Everyday for the month of October, let's all think of something we can post in the event researchers or medical students are reading that we would want their ears to hear from our voice, the Lupus Patient itself.

OK ... I'll start.

We hurt. We are not drug seeking. We are looking for answers for relief


NEXT!!!
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
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« Reply #1 on: September 30, 2007, 04:56:44 pm »

I have fibro possibly lupus but no positive ANA reading yet. What research can be done to see the correlation between the two?
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I hate fibro
sunnipearl
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« Reply #2 on: September 30, 2007, 05:32:12 pm »

 nurse_ I HURT and I am LOOKING FOR A CURE! cray
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« Reply #3 on: September 30, 2007, 05:45:49 pm »

I have fibro possibly lupus but no positive ANA reading yet. What research can be done to see the correlation between the two?
I'm like fibro girl as I too have fibro. I know fibro is just a symptom and lupus is an actual auto immune disorder. I would like to see more studies done on both.
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Annie has fibro 33 no kids and no husband
3sisters
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« Reply #4 on: October 13, 2007, 11:06:09 pm »


I want to see more research done on the anti Cardiolipin antibodies and their involvement/significance in SLE/MCTD disease process.

                                              CandleSmilie
« Last Edit: October 13, 2007, 11:07:51 pm by 3sisters » Logged

Living with NP-SLE/ MCTD and MS. Powered by the Indigenous 7th Sense and lots of meds... Living with an invisible illness sucks. But living with an UN-diagnosed and UN-treated illness REALLY sucks.
"Where HOPE is a Work in Progress™"
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« Reply #5 on: October 14, 2007, 01:48:27 am »


I want to see more research done on the anti Cardiolipin antibodies and their involvement/significance in SLE/MCTD disease process.

                                              CandleSmilie

Good one Kimmy!
I'll keep my eyes alert for any pr-or e news alerts
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
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« Reply #6 on: October 24, 2007, 09:46:49 pm »

Please visit this wonderful site for women & health awareness made cards..
http://www.zevcards.com/celebrateWomen.php


Her blog that states she makes Lupus cards for Women's health awareness is here
http://zevcards.wordpress.com/2007/10/22/featured-cards-of-the-month-celebrate-women-collection/
  CandleSmilie
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
sunnipearl
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« Reply #7 on: October 26, 2007, 11:04:44 am »

 CandleSmilie
                           Kathy is October also cancer awareness Month? why do they have the same Months...Oh Maybe they don't have enough Months in a year for all these disease's..To sad..... nurse_ hsptl
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« Reply #8 on: October 26, 2007, 11:15:40 am »

CandleSmilie
                           Kathy is October also cancer awareness Month? why do they have the same Months...Oh Maybe they don't have enough Months in a year for all these disease's..To sad..... nurse_ hsptl

it's breast cancer awareness month in October too.
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
sunnipearl
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« Reply #9 on: October 26, 2007, 11:34:30 am »

 prplbtfy I thought so Thanks  pkin
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LupusMCTD Founder & Patient
Former Domestic Violence SURVIVOR
Kathy A. Patterson

Author of the Upcoming Memoir Book:
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A lupus patient fights the beast within her immune system and the beast at home....

e-Booklet filled with photos and videos of what abuse was, signs to look for,
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