Adminஐﻬ
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« on: January 25, 2008, 09:31:25 pm » |
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Here is our page info link http://www.youtube.com/user/LupusMCTD
AOL Browser is slow to load or play. Try using a different browser such as www.Firefox.com , it's free and takes a second to download. Plays all videos with music great!
~Enjoy!http://www.youtube.com/v/uBJ98XAsuEM&rel=1
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« Last Edit: January 25, 2008, 09:56:30 pm by Admin »
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside. www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
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Adminஐﻬ
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« Reply #1 on: February 01, 2008, 07:17:58 pm » |
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http://myspacetv.com/index.cfm?fuseaction=vids.individual&videoid=27243386Check this one out. I have another idea for the videos. It includes family phots to show the healthy people what normal Lupus famies look like, how we look like the family next door.
Except us the Lupus patient, our organs are slowly being attacked.
Send your family pictures that you want in this new video to LupusWebsite@aol.com PS.. be sure to vote or leave a comment! Thanks
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside. www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
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Lupiex5
Seeker of Support
Offline
Gender:
Posts: 79
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« Reply #2 on: February 01, 2008, 09:32:23 pm » |
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Kathy, I have alot of family pictures but there aren't alot with me in them cuz I'm the one taking them, but I'll work on it, unless you don't care if I'm in them or not. Let Me Know!!! Great Youtube video!!!! Margi
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AnnieHasFibro
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« Reply #3 on: February 02, 2008, 01:01:47 am » |
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Kathy, I have alot of family pictures but there aren't alot with me in them cuz I'm the one taking them, but I'll work on it, unless you don't care if I'm in them or not. Let Me Know!!! Great Youtube video!!!! Margi i think it's suppose to be us and our family in the pics
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Annie has fibro 33 no kids and no husband
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Adminஐﻬ
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« Reply #4 on: February 02, 2008, 11:42:23 am » |
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Kathy, I have alot of family pictures but there aren't alot with me in them cuz I'm the one taking them, but I'll work on it, unless you don't care if I'm in them or not. Let Me Know!!! Great Youtube video!!!! Margi Thank you Margi for your pics, yes if anyone has family photos they would like to submit for a new video to be put on You Tube and our My Space account, that would be awesome. Wait till you see how beautiful Margi is!
Thank you Margi and if anyone esle could send family pics I'd appreciate it and I can start making the new video. I kind a know what all I want to say in my statement in the video.~Kathy
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside. www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
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Adminஐﻬ
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« Reply #5 on: February 19, 2008, 02:28:25 pm » |
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Videos have been temp. removed from all sites, but will be back up and running hopefully by this weekend.
I have a lot of eBay items ending today other wise I'd be working on the videos in the next few days.
Once I get the videos reloaded it will have a different URL code, everyone will have to replace it if you had them on you My Space accounts.
I'm very sorry for this inconvenience. My fault and all is good.
If you need help replacing the new codes, let me know. I will help you. Kathy
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« Last Edit: February 19, 2008, 02:47:15 pm by Admin »
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside. www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
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Adminஐﻬ
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« Reply #6 on: April 16, 2008, 07:26:24 pm » |
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside. www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
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Sweet Jasmine
Jr. Seeker of Support
Offline
Posts: 465
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« Reply #7 on: April 17, 2008, 10:23:44 pm » |
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this is one of the best you have made so far
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