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« on: February 07, 2008, 09:35:10 pm »

OK SOAP BOX TIME....(I don't see the soap box smiley)

Tonight I went to order in bulk from www.lupus.org their newly redesigned booklets to send out for free to you the patients.
I was SHOCKED to say the least when I seen they now charge $94.00 for 100 booklets.(Follow link below for proof)
http://shop.lupus.org/store/category.aspx?c=lfa_em_booklets(base)

Since they charge so much and I refuse to pay that when I can continue to offer for FREE the PDF files for you and burn you a CD Rom.

Prices in their on-line store has went up DRASTICALLY remember, the pretty purple pins, many of you received them.
Last year they were only 50 cents each, now they are charging $5.00 EACH!!!
I gave those away because at 50 cents each I could afford to.But $5.00 bucks each? Sorry, there goes the days of being able to give.

I personally will stick to fundraising for the LupusResearch people only.
Lupus.org has really went wacko with their prices, KNOWING we are sick individuals that live on a limited income!!!
What a shame, I swear this site will never, ever turn to greed like that, ever.
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