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SAN
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« on: February 15, 2008, 04:20:34 pm »

does lupus alone or medication (plaqunile) alone or together, cause skin pigmentation changes? this forum comunication is new to me, i've never done it before.
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« Reply #1 on: February 15, 2008, 04:29:25 pm »

does lupus alone or medication (plaqunile) alone or together, cause skin pigmentation changes? this forum comunication is new to me, i've never done it before.
Hello SAN,  prplbtfy
Nice to meet you, I'm Kathy.

I've never been on Plaquenil, but many of the patients on here have. So they would be better to answer this question for you.

I have skin pigmentation problems my Dermatologist said is damage done from the sun. I have blotchy areas tip of my nose, forehead and sides of my face where my natural dark skin color has remained the same.
It's not Vitiligo but the opposite and for the life of me I can't think of  it's name.

There is sooo many prescriptions you have to be careful with while taking them, even certain antibiotics..

Kathy
PS... you did just fine on posting!
« Last Edit: February 15, 2008, 04:30:19 pm by Admin » Logged


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« Reply #2 on: February 16, 2008, 11:10:15 am »

Thank you Kathy,  I'm confused because my dermatologist said it was the medication, and my hematologist said it was the Lupus...they are both specialists, so I'm still in the dark.
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« Reply #3 on: February 16, 2008, 11:58:25 am »

Thank you Kathy,  I'm confused because my dermatologist said it was the medication, and my hematologist said it was the Lupus...they are both specialists, so I'm still in the dark.
SAN,
I'm sorry they are confusing you. I think when a Dr. knows a patient "has something" that "has certain features" they just chalk it up as that feature of that illness. I would go more toward what the Derm says as he went to school for skin . But he/she could be wrong.

Questions to ask youself:
1) Did the rash appear before or after taking the Plaquenil?
2) Does it itch?
3)Is it scaley (or crusted over)
4) Does it get worse when you go outside?

Pay attention to questions like that. Make note of it. So at your next Dr. appt. bring this information up to either Dr. to rule it out (or rule it in as Lupus)

We have a discussion somewhere here where we all talked about wearing makeup to cover up .
Do you have problems covering it up?

Kathy
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
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« Reply #4 on: February 17, 2008, 05:53:32 pm »

Hi SAN~

Yes, Plaquenil can affect your skin, more like making you sensitive to  UV rays. Some darker skin people on plaquenil have experience graying patches on their skin while on plaquenil.


I have a cousin who has a severe butterfly rash, she's been diagnosed for decades, she has been on plaquenil for years, and still has a butterfly rash, which she covers with thick pancake foundation make-up. The sunlight causes her rash to get worse and throws her into flares. She's on plaquenil and still has rashes when flaring.

In a certain population of  SLE patients,  those who are sensitive to sunlight and florescent lighting, upon exposer, they will experience rashes, along with fevers and flaring the illness with other effected body organs. When I'm exposed to sunlight I will run fevers over 100, have chest pains, horrible fatigue and arthritis flares.

It would be interesting to see what your rheumatologist would say about the rashes  wink . Your dermatologist might be right, and your hematoligist might be right.

Yes, patients can be on plaquenil and still experience rashes.
If you are fair skinned, and on plaquenil, use sun screen, wear protective clothing just to keep yourself safe.   CandleSmilie

Wishing you well, Kim
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« Reply #5 on: February 18, 2008, 01:41:48 pm »

Hi Kim, thanks for your reply.  I had been on meds for 2 yr before the skin changes started.   This yr the butterfly rash appeared. Exposure to sun does cause a mild reaction, more on my arms than face....   For Kathy, I have tried to cover it but the makeup would need to be very thick, so I just us sunblock lotion.  My skin tone is more toward "olive" than "white or fair"
SAN
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« Reply #6 on: February 18, 2008, 02:36:21 pm »

Hi Kim, thanks for your reply.  I had been on meds for 2 yr before the skin changes started.   This yr the butterfly rash appeared. Exposure to sun does cause a mild reaction, more on my arms than face....   For Kathy, I have tried to cover it but the makeup would need to be very thick, so I just us sunblock lotion.  My skin tone is more toward "olive" than "white or fair"
SAN
SAN,
I'm olive tone too. I used to wear Physician's Formula eye concealer it worked great for dark circles under the eyes. But when this blotchiness of my skin on the forehead, tip of my nose, and my cheeks became so bad I said "enough!" LOL
I don't wear any makeup whatsoever now.
I do like lip balm, or a vaseline base to help with my dry lips.

I'm blind as a bat, I can't see to put on mascara without glasses, but since those have to be in front of my eyes I said forget that one too..Once upon a time I had beautiful long lashes.
But my eyes are dark & so sunken in it wouldn't matter how much mascara I put on them.


Sunblock is the best thing to put on our skins... along with a smile  nod
« Last Edit: February 21, 2008, 01:23:21 pm by Admin » Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
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« Reply #7 on: February 20, 2008, 10:05:13 pm »

THANKS to each one that has responded to my question, i don't feel so isolated now, but it's very sad to see how many people there are dealing with this, and how varied the symptoms can be. My eyelashes are falling out too, as is my hair; some grows back but not nearly as much as falls out.  I could write a book on everything that hurts!
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« Reply #8 on: February 21, 2008, 12:02:50 am »

THANKS to each one that has responded to my question, i don't feel so isolated now, but it's very sad to see how many people there are dealing with this, and how varied the symptoms can be. My eyelashes are falling out too, as is my hair; some grows back but not nearly as much as falls out.  I could write a book on everything that hurts!
CandleSmilie you will have a great support system here. Just post and we'll help you through this as everyone is so friendly prplbtfy plain and simple lupus sucks
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« Reply #9 on: February 21, 2008, 01:28:13 pm »

THANKS to each one that has responded to my question, i don't feel so isolated now, but it's very sad to see how many people there are dealing with this, and how varied the symptoms can be. My eyelashes are falling out too, as is my hair; some grows back but not nearly as much as falls out.  I could write a book on everything that hurts!
Sheila,
This is from Duke University on alopecia
http://www.duke.edu/~papabell/cbarber/faqs_alopecia.htm
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
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« Reply #10 on: March 31, 2008, 05:55:16 am »

 LUAW how are you feeling?
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« Reply #11 on: May 13, 2008, 11:49:52 pm »

San, I am late getting to your post but I had to put my two cents in too.
I was on plaquenil for around 3 yrs. I have been off of it for a year now. My doctor suggested I stop just to see how I feel with out it. I am more tired now but that is ok. I am staying off of it because it had a slight effect on my eyes. Some of the plaquenil was starting to build up in my eyes. I had to have a field vision test to see how much damage was done. None, thank God. I figured why push it. I decided to not go back on it.

Now to your question. The plaquenil did change some pigment in my arms. I am a med skin toned white female. I now have darker blotches on my arms. My rhuemy said the plaquenil will do that, especially if you don't use sun block while outside. He always reminds me to wear it. I don't. I can't stand the stuff. I hate the way it feels on my skin. I feel dirty with it on. Like a greasy feeling. I can't stand foundation for the same reason. I don't spend much time at all in the sun so that is no real problem for me.

I hear you loud and clear on the hairloss. My hair has gotten so thin. It is horrible. I never had real thick hair to begin with but it was enough. Now I have to wear it in a headband because it is too thin to wear it like I used to. My eye lashes and eye brows are sparse too.
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« Reply #12 on: March 03, 2009, 01:00:52 pm »

does lupus alone or medication (plaqunile) alone or together, cause skin pigmentation changes? this forum comunication is new to me, i've never done it before.
Bumping up Sheila's thread.
Can anyone contribute to it?
THanks!
KAthy
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
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