Buddy 2 Buddy 3 Way Phone Conversations

[Adminஐﻬ]

"REACHING OUT....TOUCHING ME....TOUCHING YOU.....SWEET LUPUS LINES....TALKING NEVER FELT SO GOOD!"

Starting tonight Thursday Sept. 11, 2008 we are starting something new that is a very dire need of many members/patients.

We are using our telephones to hold 3 way conversations.
Sept. 11, 2008- Tonight's topic will be:
"Communicating About Your Health With Your Doctor"

Calls are made at 5:00 pm PST - 6:30 pm PST
Right now Kim is hosting.
If you would like to be included in next Thursdays call, please email your name and phone number and area code to Kim (3 Sisters) <a href="mailto:LupusMCTD@aol.com?subject=Buddy 2 Buddy 3 Way Conversation">:Add my name/phone number to the list:[/url]


We will get the following weeks topic schedule made up so you can post.
We will only accept the first two/three who post their name.
But we will have the third name & number in the event that person doesn't show up for their phone conversation [/size]
**NOTE~Sorry, no International calls. This is for the USA only.

[Adminஐﻬ]

Thursday Sept 18 Buddy 2 Buddy 3 Way Phone Conversations
please email your name and phone number and area code to Kim (3 Sisters) <a href="mailto:LupusMCTDAsst@aol.com?subject=Buddy 2 Buddy 3 Way Conversation September 18th">:Add my name/phone number to THIS DATE list:[/url]

TOPIC TO BE ANNOUNCED~

First 3 who sign up.
#3 is back up if #1 or 2 caller doesn't pan out[/size]

1.) Lacy Ann

2.) Angel

3.) Kathy/Clare?

[Adminஐﻬ]

Thursday Sept 25 Buddy 2 Buddy 3 Way Phone Conversations
<a href="mailto:LupusMCTDAsst@aol.com?subject=Buddy 2 Buddy 3 Way Conversation September 25th">:Add my name/phone number to THIS DATE list:[/url]

[size=14pt]TOPIC TO BE ANNOUNCED~

First 3 who sign up.
#3 is back up if #1 or 2 caller doesn't pan out[/color]

1.) Clare

2.)

3.)[/size]

[Crabbyla279]

"REACHING OUT....TOUCHING ME....TOUCHING YOU.....SWEET LUPUS LINES....TALKING NEVER FELT SO GOOD!"Starting tonight Thursday Sept. 11, 2008 we are starting something new that is a very dire need of many members/patients.

We are using our telephones to hold 3 way conversations.
Sept. 11, 2008- Tonight's topic will be:
"Communicating About Your Health With Your Doctor"

Calls are made at 5:00 pm PST - 6:30 pm PST
Right now Kim is hosting.
If you would like to be included in next Thursdays call, please email your name and phone number and area code to Kim (3 Sisters) at LupusMCTDAsst@aol.com

We will get the following weeks topic schedule made up so you can post.
We will only accept the first two/three who post their name.
But we will have the third name & number in the event that person doesn't show up for their phone conversation
**NOTE~Sorry, no International calls. This is for the USA only.

Count me in, Momma! I don't expect that you want my number to be posted here as well?!

[Adminஐﻬ]

NO DO NOT POST YOUR PHONE NUMBERS ONLINE!
<a href="mailto:LupusWebsite@aol.com?subject=Buddy 2 Buddy 3 Way Conversation September 18th">

 :Add my name/phone number for Sept. 18th:[/url]

<a href="mailto:LupusWebsite@aol.com?subject=Buddy 2 Buddy 3 Way Conversation September 25th">
 :Add my name/phone number for Sept. 26th:[/url]

Just pick the date above, add your name & phone number inside the email link on the dates you would like to be included.
We will have up to 3 people in the event one can not show up on the phone, phone battery goes dead, etc.
It is first come first serve.

[Adminஐﻬ]

Thursday Sept 18 Buddy 2 Buddy 3 Way Phone Conversations
please email your name and phone number and area code to Kim (3 Sisters) <a href="mailto:LupusMCTDAsst@aol.com?subject=Buddy 2 Buddy 3 Way Conversation September 18th">:Add my name/phone number to THIS DATE list:[/url]

TOPIC TO BE ANNOUNCED~

First 3 who sign up.
#3 is back up if #1 or 2 caller doesn't pan out[/size]

1.) Lacy Ann

2.) Angel

3.) Kathy/Clare?

We need at least one more member for Sept. 18th 3 way Buddy 2 Buddy call.

[Adminஐﻬ]

Friday Sept 26 Buddy 2 Buddy 3 Way Phone Conversations
<a href="mailto:LupusWebsite@aol.com?subject=Buddy 2 Buddy 3 Way Conversation September 26th">:Add my name/phone number to THIS DATE list:[/url]

TOPIC TO BE ANNOUNCED~

First 3 who sign up.
#3 is back up if #1 or 2 caller doesn't pan out

1.) Claire

2.) Tesa

3.)

BUMPING UP TO GET SIGN UPS FOR NEXT THURSDAY....
TOPIC IDEAS ANYONE????

***Here is some ideas we could talk about in the future calls:

a)-Young adults- what is it like for you?
b)-Africian Americans- Lupus strikes your nationality more often than whites.Want to talk to us how it's been for you?
c)-Spouses-Want to share your stories with us, How to cope?
d)-Wanna be journalists- care to ask usthe patients questions?
e)-Men to women- talk to us, ask us what hell we're living
f)-Family member of a loved one, how you can be more supportive?
h)-Physicians or Nurses-lets talk
i)-Neighbor or friend, need to know more what your loved one is going through?


Post other topic ideas if you think of them... this  is just what is off the top of my head....[/size]

[chiara38]

Hello Kathy, Kim, everyone....
how is your night going?  Regardining the Buddy to Buddy conversations I really would like toparticipate as I just talked with Kathy about meeting tess and others but Thursday nights I have Book Study where we go through one book until the end regarding Jehovah and His promises..things that help us cope in this system of things..that begins at 7:30 my time Florida for an hour..I leave my home around 700pm and usually get home by 9pm or so depending on what I need at the store or maybe I feel like chinese wings or something like that...Tuesday nights i have our Theocratic meetings and service meetings..Saturday am we go out house to house to preach the good news of Jehovah God's Kingdom and Sunday meetings at the moment we go 12:30 until 2 or so pm...So my time could be available with careful planning...my nights are usually free besides tuesday and thursday...I do not have hot dates nor do I go movies often..I did see Women with an old friend of mine when i went to the Assembly this past weekend..it was really good but what they say in three about Jehovah's witness peeking through doors and windows was not true but I though great advertisement we are talked about in a movie good going director..so look for that part of it if you go i said out loud thats not what we do and the audience was like ohhhhhh..so it was funny...
anyway..off to take my meds and get some snooze as I go to work early in the am..love you alll..I had great fun chatting with you Kathy..my love to everyone..night many hugs...c u soon.. so long....clare

[Adminஐﻬ]

Hello Kathy, Kim, everyone....
how is your night going?  Regardining the Buddy to Buddy conversations I really would like toparticipate as I just talked with Kathy about meeting tess and others but Thursday nights I have Book Study where we go through one book until the end regarding Jehovah and His promises..things that help us cope in this system of things..that begins at 7:30 my time Florida for an hour..I leave my home around 700pm and usually get home by 9pm or so depending on what I need at the store or maybe I feel like chinese wings or something like that...Tuesday nights i have our Theocratic meetings and service meetings..Saturday am we go out house to house to preach the good news of Jehovah God's Kingdom and Sunday meetings at the moment we go 12:30 until 2 or so pm...So my time could be available with careful planning...my nights are usually free besides tuesday and thursday...I do not have hot dates nor do I go movies often..I did see Women with an old friend of mine when i went to the Assembly this past weekend..it was really good but what they say in three about Jehovah's witness peeking through doors and windows was not true but I though great advertisement we are talked about in a movie good going director..so look for that part of it if you go i said out loud thats not what we do and the audience was like ohhhhhh..so it was funny...
anyway..off to take my meds and get some snooze as I go to work early in the am..love you alll..I had great fun chatting with you Kathy..my love to everyone..night many hugs...c u soon.. so long....clare

Clare,
I just changed next weeks to Friday, will that work out for you?

[chiara38]

Yes Kathy that will as far as I know I have nothing planned after I get home from Rose's And David's..I am usually three from 10 until maybe 2 or so my time....let me know what time  c u..hugs..clare

[Adminஐﻬ]

Yes Kathy that will as far as I know I have nothing planned after I get home from Rose's And David's..I am usually three from 10 until maybe 2 or so my time....let me know what time  c u..hugs..clare

How about a week from today next Friday the 26th at 5 pm my time or we could talk earlier. I'll be calling so it's free for you girls. I just don't want to use up your minutes on your cell phones. So keep that in mind.

[chiara38]

Kathy..my good friend....my sister...That is a date...I am looking forward to meeting Tesa and chatting more with you...this to me is awesome...I do love a few things about high techno...do not understand a lot of computer stuff but enough to fake it and get the benefits I need from the systems.....
How are you today Ms. Katsu?   I worked at Rose's this am..David was kinda blah..I guess it was more from being home all the time...I did not get a chance to tell him about the Phenergan... Rose says he has meds he takes so..I shall talk with him later about it...
I have to tell you...I had such pain in my knee joints this am then the pain travelled into my two feet..I have had this travelling pain a few times this year but it stayed in my feet and they called it arthritic gout and treated it with colchicine which made it go away..but before it went away it lodged all over my body in any loop holes it found vulnerable..like my arms so i could not lift them..but scott helped me with that and soon I had regular mobility...
i am so tired of this today..but I will continue on..i bought a piece of lamb and broiled it and steamed some okra with tri color pasta and an jalapeno....it is good but it seems i am not too hungry just tired so i am going to rest for awhile..i will check later on any new messages....
My love to everyone...many hugs...give yourselves hugs 4 me...Together we are making it..one moment at a time because that is all we have...so we will smile and dig deeper for peace and joy..we have love from our God Jehovah the Most Almighty through His son Jesus our King who loved us and gave His life a ransom...and we have the love of each other..our family....the sister and brotherhood of those who understand what it feels like to be you, me...
Take care of yourselves....So long...your friend and sister.....Clare....

[Adminஐﻬ]

Kathy..my good friend....my sister...That is a date...I am looking forward to meeting Tesa and chatting more with you...this to me is awesome...I do love a few things about high techno...do not understand a lot of computer stuff but enough to fake it and get the benefits I need from the systems.....
How are you today Ms. Katsu?   I worked at Rose's this am..David was kinda blah..I guess it was more from being home all the time...I did not get a chance to tell him about the Phenergan... Rose says he has meds he takes so..I shall talk with him later about it...
I have to tell you...I had such pain in my knee joints this am then the pain travelled into my two feet..I have had this travelling pain a few times this year but it stayed in my feet and they called it arthritic gout and treated it with colchicine which made it go away..but before it went away it lodged all over my body in any loop holes it found vulnerable..like my arms so i could not lift them..but scott helped me with that and soon I had regular mobility...
i am so tired of this today..but I will continue on..i bought a piece of lamb and broiled it and steamed some okra with tri color pasta and an jalapeno....it is good but it seems i am not too hungry just tired so i am going to rest for awhile..i will check later on any new messages....
My love to everyone...many hugs...give yourselves hugs 4 me...Together we are making it..one moment at a time because that is all we have...so we will smile and dig deeper for peace and joy..we have love from our God Jehovah the Most Almighty through His son Jesus our King who loved us and gave His life a ransom...and we have the love of each other..our family....the sister and brotherhood of those who understand what it feels like to be you, me...
Take care of yourselves....So long...your friend and sister.....Clare....

Dear Clare,
Please forgive me when I type your name in differnet versions such as Claire, Clare, etc. If you only know how many emails, posts, PM's, etc I do a day I get fustrated getting my brain to think correctly an dto properly address one's name.
I know you understand as we all do. And to be honest, I get members mixed up sometimes. I'd like to blame it on my medicines, or stress, but sometimes right before my seizures I do things backwards, and that includes my talking. (seriously)
I had another bad night last night. My lower hips are getting bad or else it's the kidney issue I have going on.
I go Monday (I just wrote the word Money... see how silly my words can come out) for help  with the Endo Dr.

I just now got online myt test result for my MRI of my next.
I'm half here mentally today to understand much.
I will post my result and hopefully some smart whipper snappers will understand what the result means. I'm to call the Dr after 5 days of having the MRI but why should I? I can read my results online. (Cool, huh?)

Clare I will keep you, David and Rose in prayer. I didn't realise you had arthritic gout in your feet. Girl talk about some pain! I have it in my large toes.  It flares up in the winter time, the swelling is so visable and painful. Last year I prayed they would give me a shit right in the middle of the swelling. THey said no  take anti inflammtories.
Isn't that a shame when most our symptoms is what all the Drs want us to take?
My Dr refuses to prescribe Prednisone unless it's befor my surgeies I have done. Due to my "age" and I'm post menopause.

Try to remember the Phenergren for David's nausea. It can be oral tablets or if he's real bad, rectal suppositories.Bless his heart, he needs to eat to gain strength to get through his Chemo.

THank you Miss Clare for your kind love & prayers you share with your family here.
I can't wait for you to meet Tesa, you two girls will hit it off, I know it. I've spoke to her before and have been friends with her for quite some time.
Even when her computer broke, I hand wrote her letters to stay in touch. Her friendship meant that much to me and I didn't want to ever lose her friendship.

Well I best get going to post my test results.
If you know anything about necks  feel free to give me your imput.
I'll go post it in my personal folder called Chatty Kathy. OK
Praying you will have a pain (I just typed pay)  free weekend
When I get this bad I need to get away from the computer, did you know too many hours at the computer can make an epileptic have convulsions?

Love
Sista Kathy
  

[chiara38]

My dear Ms. Katsu...you can call me anything you like..spell my name however it comes out and you can just call me crazy gal....i am kewl with whatever....I am so sorry that you had a rough night...that is what gets me not one day without this adamic stink bothering up our daily living....make me a judge and send in the child molesters and give me the power to zap them a thousand times over with all the diseases that good people have....
What I know of necks is mine...my right side from the temporal through the carotid..thoracic and jaw and behind where the trapezius muscle is if you get someone who is into massage therapy they can work out kinks or if you put prossage or biofreeze on it..it will help a bit...the drs are stupid if the prednisone will help they should give you..they have all these answers about you are not the age or it is not in your race..as if such extensive clinicals have been accomplished and the results finite...sometimes it is the pillow and as you said your hips were bothering you sometimes pain refers to your upper extremities at least with me...
I do not understand MRI's or xrays myself...but there are charts of what normal is on most med sites...i usually go to Merck.com..the updates are better I think..
yea that giut comes and goes but what is fascinating..not really but u know what i mean..is how the pain travels from one region of the body to the other until it settles in that cavity in the instep...having it in your toe sounds really off the chart as you cant just dig it out..I grind my instep into anything with an edge..it is a wonder i have cut myself from the pressure I use...i actually did an ionic foot bath and you should have seen the crud that came out in the water..all that toxic stuff..do you have access to that sort of therapy?  I was privileged to get it from Scott as he got a newer version that was better for his clients..I feel better having done the treatment even though it is very tender in my foot from my ankles but that is nothing right now...
Yes I will tell David about the Phenergan...I think he will act on that...they are having supper right now so I will call around 8pm....Thank you so much for keeping them in your prayers..I tell him that you do and he really appreciates you doing that...he says he can use all the prayers he can get but I have not told him about your own heartaches...I have told Rose and she is quite concerned about everyone on the site..she was glad to know I had this avenue to vent and meet friends who are of like interest...I told her about the buddy to buddy calls and that was something she thought what an inventive idea to meet each other so you are in her prayers as well...
No i did not know that epileptics could get convulsions because of that...wow..I learn something new every day...My nephew Ricardo is Autistic and they said that he would not make it past 6 because of all his heart surgeries, fluids in the brain that he gets drained ever so often and he gets epileptic spasms at times...he has overcome a lot of that stuff and is now 10 years old in mainstream school..he is doing extremely well...so he is the only one I know but it is not nice when they do go into convulsions..that is sad...
Well Ms. Katsu..I hope you have a pain free week end also... I know it is a lot to expect but I pray for it.. for everyone here...I will keep in touch over the weekend..talk to you all soon..many hugs..love clare....

[Adminஐﻬ]

that is what gets me not one day without this adamic stink bothering up our daily living....make me a judge and send in the child molesters and give me the power to zap them a thousand times over with all the diseases that good people have....

Amen Sista Clare!!
I agree 100%

[Adminஐﻬ]

Do you have unlimited calling via an Internet Provider (cable) where there is no minutes involved in your cell phone useage?
And would you like to help be a 3 way Buddy 2 Buddy Volunteer caller?

I am trying to match up everyone by their age, illness, etc.
To where you can have one on one calls with fellow members who are looking to chat live on the phone.
So many of you need someone to speak to who understand what you are going through.

To qualify all you need is a phone that has the 3 way conversation option, an ear to listen and a mouth to speak from... pretty easy.

Post here what day of the week and hour you are available to chat...

Keep in mind 3 hour coast to coast time difference when planning your chats.
Try to keep chats to an hour in length.

I'm open to any or ideas to help this to continue to be successful form of friendship and our therapy of understanding "why us"?

Gentle reminder, DO NOT POST YOU R PHONE NUMBERS TO THE BOARD!!!
If you are not sure how to send a PM (personal meassage) then post with someone's name to get their attention and tell them you'd like to Buddy Chat with them and to send you their phone number or vice versa

[lupusjoy]

YOU NO I AM ALL FOR THAT KATHY SO CALL ME ANY TIME STAY BLESSED ((TESA))

[chiara38]

Hi Tesa...This is Clare..just wanted to say hello as we willl be speaking on Friday evening 8pm my time...our time? I understood you to be close to my sisters over there by MD... I had a great time chatting with Kathy the other day and she thought we would become friends..in my heart I already feel friendship for everyone on this site..a big family for those of us who need understanding and encouragement..I am so appreciative for kathy opening this site...
Well, I worked hard today and just finished dinner so I am going to take a shower and get some zz'ss...I have an appointment with the case manager tomorrow at 11am to try and find the Rhumatologist and opthamologist I need..She has been trying she says for awhile but she does not give updattes so i made an apt..hopefully she can give me some answers but when you are getting medical free..it seems you literally end up begging for the assistance you need, when you need it but overall they have been good with my meds and xrays and seeing me on short notice so I guess I am not complaining...just talking....
okay so everyone especially you Kathy..get some rest..eat something good and will talk to you soon..love to you all..many hugs..talk to you Tesa..So long....Clare

[Crabbyla279]

Clare~
Thanks for the update... I totally hear you in regards to the exhaustion thing!  I got home from work and my mom took one look at me and said- "you look tired"- to which I just rested my head on her shoulder for a hug.  It had been a long day... the last hour and a half really took a lot out of me.  I made myself some chicken noodle soup and crackers.  After I finished up, I felt better- somewhat- but felt like I needed some chocolate comfort.  I decided to make my chocolate cupcakes with mini peanut butter cups.  I just finished up baking them... have already eaten two of them- would have eaten more... but need to limit my milk consumption tonight, we're almost out of milk.

One of these days, I'm sure we'll get a chance to talk during one of the buddy chats... it is a great thing Kathy (Momma to me) has decided to do for all of us.
luvs ya bunches~
Lacy Ann aka Butterfly Goddess

[chiara38]

Hello Butterfly ...
I am glad you feel better after eating..I do not bake anymore....i get Black Jack Cherry frozen yoghurt now instead of Irish cream icecream...by Hagan Daz....it gives me less calories and it tastes really good...it is nice to have your Mom to put your head on her shoulder..that is definitely out of this world special..I miss my Mom..but my hope is that Jehovah will resurrect her and we will live forever in the system of things in Paradise as life was intended to be....
Well Ms. Butterfly Goddess..you have an awesome night..i know we will meet one day..i am hoping to visit my friend Patricia in Kernville CA soon and so i could swing around the state....you can get my number from Ms. Katsu if you want...
Take good care of yourself Lacey Ann..thank you for your really sweet note....many hugs..love u bunches 2...get some well deserved rest tonight....Clare

[Adminஐﻬ]

28 minutes and counting.....
Instead of waiting 28 minutes for 5 o'clock to get here, I might start calling Tesa & Clare now, in case it takes me 30 min. to figure out the 3 way calling.

So far it's been a positive experience and support for those that have joined in....

Remember, NEVER post your personal information on the Internet.Send it through the personal message system we have here. It will not reveal your email address to anyone. Again, that is for your protection from Trolls and Spammers.

[lupusjoy]

HEY ALL HOW ARE YOU DOING ,FINE  IT WAS A MISTY DAY FOR ME IN DC I HOPE YOU ALL HAVE A NICE DAY AND HOPE YOU HAVE A BLESSED NITE,AND REMEBER GOD LOVE YOU AND SO DO

[lupusjoy]

hey all i had a great time chating on the threeway with
kathy and claire we had a ball and it was better than righting back and fourth ,so if you are thinking about it you should try it,you can ask anyone here on the site to set up a threeway call so you and me and the other person can chat try it ! and you will love it ....

stay blessed

[Adminஐﻬ]

Tesa,
I enjoyed myself as well!!
Now you have Clare's number and you two can keep in touch.

With winter coming, us being stuck in the house, we can kick back and talk on the phone!

Thank you for posting, I really did have fun talking to you girls 
Love,
Kathy

[chiara38]

  First of all I would like to say that I received the Hope Bracelet Thursday all the way from from Sacramento California....I was quite excited to get it an read the letters fro Kim and Kathy..what an encouragement that brings to me....I am trying to organize in my head what I want to say in my letter..Then yesterday Friday 26th...we had our three way Buddy to Buddy phone conversation....Oh my goodness..the thrill of hearing voices from so far away..it was really awesome meeting Tesa and getting to know her and about her many triabulations that this adamic body has presented to her..She is so positive and outgoing..she made me feel right at ease with her calm, quiet voice....I thought it would have been difficult not knowing if the phones would disconnect or static especially on my cell..I kept wondering if both Kathy and Tesa were hearing any static but I did not want to say anything and they did not so I assume three was none..Thanks be to Jehovah God...Ilearned more about our Founder Kathy.that she is so funny...it was good to talk for awhile and the minutes turned into I think we were on for possibly two hours...it was just about 10 my time....the conversation was upbeat and Tesa and I both gave Kathy some good advice...Kathy really needs to be reminded to take more time for just her...a siesta if you will throughtout a busy day...we cannot have her overworked even though she loves being there for everyone it will not do for her to become more ill because of it..so maybe Kathy I was thinking if you wanted to delegate some cyber work such as welcome emails to some of us that way it leaves you free for the more founder stuff....I do not know what you may want help with but I could try and do it..I learn quickly...
I am very impressed with Teasa and her *motto* of taking it one day, one minute at a time* it really does not keep us stress free when we get caught up in the stuff about tomorrow when the day is not yet finished...I told Tesa and Kathy * how can one body take all that abuse*  both Kathy and Tesa are forthright about all the things they have had to endure..I felt quite humbled in their presence listening to them and you know..neither Tesa nor Kathy blamed Jehovah Almighty...I was so taken by that attitude because Jehovah is not the one who makes us ill..it is like the story of Job when Satan said to God that Job only loved Him because He Jehovah protected him and gave Job all he needed and satan challenged Jehovah and Job's integrity...but even though all the thing happened to jOb that he did not understand why...he still did not curse God..He blessed the name of Jehovah and in the end was given more that twice what he had before...The ruler of this wicked system of things is satan and he uses everthing in his power to discourage good people..he sends illness, death, famine, and all the other monstrosities that disable us to try to mess with our minds as our mind is the devil's playhouse..he just loves to send negative energy via whatever means possible but when we become atuune to his coniving we can overcome all his darts and toss them back at him instead of taking in the heartaches and disappointments and become depressed..satan is a liar and the father of lies from the garden of Eden with those two fools adam and eve...boy am I going whup those two if I see them in paradise..right across the head..I am so mad at them...
Anyway...having the Buddy to Buddy phone system is seriously another avenue to have someone you can connect with and talk about your day and get some vital positive energy to get you through the day or night..it is like the song..reach out and touch...somebody's hand make this world a better place....touch is very healing and maybe we cannot touch physically but in our spirits we can reach out with our thoughts and our hearts and we can pray for each other and build up each other with words..words are powerful and maybe we can just simply knock down the boundaries of words that others have said like..you are not sick..you don't look sick..you are lying you just want attention or some other stupid thing that inconsiderate people family friends say because they do not want to understand...when you hurt so bad inside your heart from the chronic pain in your body and someone calls you a liar..it really sucks....and to me that is crap....so together we can make the difference..apart we stand alone..I definitely do not like being alone on my island...i have lots of fruit and coconuts so come on over anytime..I am willing to hang out with whoever wants to....I had a wonderful time getting to know Tesa and Kathy and you will also..
Sooooooooo....join in the Buddy to Buddy 3 way phone conversations....it will upbuild you and make you feel connected to others who understand, empathise, who live similar lives, who undergo similar pains and heartaches..Do not be afraid to open up to each other, to be yourself..you do not have to be anyone but you...YOU are worth all the good friends and this is a FAmily system..this is better than some of the families we have...shame but true....
I look forward to my next phone to phone and I really appreciate Kathy setting it up so I could have experienced such good friendship....Thank you Kathy..thank you Tesa...talk to you again soon....many hugs to you all..have a wonderful weekend..and you are in my prayers..take very good care of yourselves...stay safe...love always ..May Jehovah our most Almighty Sovereign God watch over you through His Son Jesus our reigning King...may you walk where Jehovah's angels feet have trod...So long......Clare

[Adminஐﻬ]

it was good to talk for awhile and the minutes turned into I think we were on for possibly two hours...it was just about 10 my time....the conversation was upbeat and Tesa and I both gave Kathy some good advice...

Clare,
It was 2 hours that we talked!!!
Now that we *know* each other as friends we can pick up that phone now and say "hey I'm having a bad day do you have a few minutes to talk?".
Or if it's a good day or you are not sure before you go to see a new Dr what questions you shuld ask, call up your Buddy.
And your friends will be there for you.
We are the only ones that know our bodies and what hell we go through, and it does make it easier to talk to one who understands what you are going through.

When I met Kim, it was strange to have someone say "it's OK I understand what you mean or feel or what I was trying to say". Because for years even my own late Mother did not understand, and she was a nurse!
(she worked in the baby dept that why she didn't understand my health issues)

I am so happy you enjoyed our talk as much as I did.. It gave me 2 hours to prop my legs up (I have poor circulation) and really can use breaks like that every now & then.
But we need to make sure our phones are charged up so the battery won't go dead during a call, which I'm sure might happen to one of us.

Clare your positive outlook along with Tesa's positive outlook is a great combination of a winning *team* of friendship.
I hope there will be many more calls between all of us.

  Kathy

[Adminஐﻬ]

Anyone wanting to talk this week to any of the members, be sure to contact them, schedule a date & time for a two way or a three way call between yourselfs.

Keep in mind your time zone difference.

Some of you might already have each other's phone numbers and are scheduled to talk which is GREAT!!!! 
If you need help post or pm me

[chiara38]

Kathy.........
You mentioned this the other day when you were talking about Tesa and your own experience with kim that we should really get the Buddy program on again so that we have someone to call and let them know how we are or have that someone check up when we do not hear from someone...i am willing to keep track of whoever wants to become friends..i have minutes to spare usually and do not mind calling whenever as Long as i am feeling good as well and even if I am not if I have an obligation I will keep it...Well..I am not going to any more posts or i will never get in my bed...So long katsu...my fingers are sausage now..badbadbad Clare..LOl shout out to Holly, KIm, Lacy ann. Tesa are you home yet?  call me....Debby, Annie, fleaman, coffenole, that Angel girl..all the members that I do not know yet....Goodnight...rest well....
sign up for the buddy buddy thing gang...reach out and TOUch Someone.......you never know whose life you may be saving.....it is a tough world out there..thinking of canning myself........talk soon...Clare

[Crabbyla279]

Clare~
     Too tired to call, but will send a quick shout out to let you know that I got home safe and sound tonight.  I ended up closing tonight instead of leaving at my usual 4pm- still had about 2.5 hours to make up from last Monday's endoscopy appointment- by closing, I was able to take another 1.5 hours off my IOU to the Y lol.  I have just an hour left... staying at least a half an hour tomorrow and Friday and then I'll be all set.

      I didn't come home to stay though, right after work, I came home, did a quick change of tops and fixed my hair.  Added some jewelry (my signature butterflies of course, lol) and I was back off and running.  Picked up two co-workers and headed off to the annual Y dinner.  Have only been home a little more than an hour.  I am so tired... my cold is so draining.  I can't wait until the weekend!  Can we say, sleep!!!!  As much of it as I can get between Friday and Saturday!

     Well, I need to get going too... this quick post quickly became a mini-novel, lol.  My right hand is swelling again and its sore... not to mention the headache that has developed from the stuffed up nose!  Really just trying to hold off taking the Robitussin until around 11 tonight... I think I can deal with the taste etc afterwards easier if I hold off- too soon after eating my dinner, if I set off the gag reflex there's no telling what may happen!

On that note, g'night my dear one... may you wake up relatively pain free in the new day!
luvs ya bunches~
ME

[Adminஐﻬ]

Kathy.........
You mentioned this the other day when you were talking about Tesa and your own experience with kim that we should really get the Buddy program on again so that we have someone to call and let them know how we are or have that someone check up when we do not hear from someone...i am willing to keep track of whoever wants to become friends..i have minutes to spare usually and do not mind calling whenever as Long as i am feeling good as well and even if I am not if I have an obligation I will keep it...Well..I am not going to any more posts or i will never get in my bed...So long katsu...my fingers are sausage now..badbadbad Clare..LOl shout out to Holly, KIm, Lacy ann. Tesa are you home yet?  call me....Debby, Annie, fleaman, coffenole, that Angel girl..all the members that I do not know yet....Goodnight...rest well....
sign up for the buddy buddy thing gang...reach out and TOUch Someone.......you never know whose life you may be saving.....it is a tough world out there..thinking of canning myself........talk soon...Clare

Miss Clare,
Yes here is the Buddy 2 Buddy link. http://www.lupusmctd.com/index.php?topic=3869.msg19922#msg19922
The link can also be found at the drop down menu as well.

Thank you for bringing this information up for all our new members to read about in the event they too would like someone to call them.
Katsu