Welcome To www.LupusMCTD.com
March 28, 2024, 07:52:18 pm *
Welcome, Guest. Please login or register.

Login with username, password and session length
 
   Home   Forum Help Search Calendar Login Register  
Pages: 1   Go Down
  Print  
Author Topic: Lupus Research  (Read 4908 times)
0 Members and 1 Guest are viewing this topic.
NDLupus
Seeker of Support
*
Offline Offline

Posts: 5


« on: September 16, 2008, 06:45:30 pm »

there really should be an awareness campaign for Lupus....right?

Well, I'm working to change that. My name is Anna and I am a senior at the University of Notre Dame. I'm also a Lupus patient, diagnosed 7 years ago. For my senior thesis project, I want to create an awareness campaign for Lupus; this would include things like magazine ads, billboards, signs for buses and other public transportation, television/radio commercials, etc.

As part of my research, I am interested in talking to as many people as possible - both Lupus patients and those who know someone with Lupus or have a Lupus patient in their family. I want to know what kind of message other Lupus patients would want this awareness campaign to have. While I have a few ideas of my own, I certainly cannot speak for all 2 million of us who deal with this disease on a daily basis.

If you are willing to give your thoughts on what an awareness campaign should or should not be, please post a reply. If you are willing to go into more depth about your Lupus experiences, your diagnosis, how you cope with the disease, etc. please email me at asjordan.2@gmail.com

Thank you in advance for you interest and willingness to help me!

Sincerely,
Anna
Logged
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #1 on: September 16, 2008, 07:21:15 pm »

there really should be an awareness campaign for Lupus....right?

Well, I'm working to change that. My name is Anna and I am a senior at the University of Notre Dame. I'm also a Lupus patient, diagnosed 7 years ago. For my senior thesis project, I want to create an awareness campaign for Lupus; this would include things like magazine ads, billboards, signs for buses and other public transportation, television/radio commercials, etc.

As part of my research, I am interested in talking to as many people as possible - both Lupus patients and those who know someone with Lupus or have a Lupus patient in their family. I want to know what kind of message other Lupus patients would want this awareness campaign to have. While I have a few ideas of my own, I certainly cannot speak for all 2 million of us who deal with this disease on a daily basis.

If you are willing to give your thoughts on what an awareness campaign should or should not be, please post a reply. If you are willing to go into more depth about your Lupus experiences, your diagnosis, how you cope with the disease, etc. please email me at asjordan.2@gmail.com

Thank you in advance for you interest and willingness to help me!

Sincerely,
Anna

Anna,
I admire your enthusiasm as I'm sure many reading your repeated posts will too.
As long as we have been on the Internet we have yet to even raise the funds for any of the items you mentioned due to the high cost of advertising.And my husband is a Supervior for city bus bench advertising, which is still too expensive to advertise on.

I would like to put you in the direction of Mr Tyler Malcom who over 23+ years ago submitted his discovery on Lupus.
Dec. 10, 1085 Tyler filed this
http://www.lupusmctd.com/index.php?topic=3329.msg19639#msg19639

Now we are in 2008 and here are some sites that are thinking about "dead cells" in which Tyler holds the Cerificate of Copyright Registration for his theory in which they too are trying to find discovery on.
http://www.lupusmctd.com/index.php?topic=3329.msg18855#msg18855

If you find our personal stories we have here, in order for you to use them, you must get permission from the original owner as well as myself as it is considered work of ours.
Thank you



Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
NDLupus
Seeker of Support
*
Offline Offline

Posts: 5


« Reply #2 on: September 16, 2008, 07:32:17 pm »

Thank you so much for your link. What a great story.
Logged
Pages: 1   Go Up
  Print  
 
Jump to:  


© Page Contents, Layout, Graphics and Design All Copyrighted by Credited Artists and are Not Public Domain.



LupusMCTD Founder & Patient
Former Domestic Violence SURVIVOR
Kathy A. Patterson

Author of the Upcoming Memoir Book:
"Fighting From The Inside Out"..
A lupus patient fights the beast within her immune system and the beast at home....

e-Booklet filled with photos and videos of what abuse was, signs to look for,
where to turn to for help, and much more to help others like me...


For more information
Call the National Domestic Violence Hotline at 1−800−799−SAFE(7233)



"The Meaning of the Words in the Second Amendment .... "That the people have a right to freedom of speech, and of writing, and publishing their sentiments;"

PRIVACY NOTICE: Warning--any person and/or institution and/or Agent and/or Agency of any governmental structure including but not limited to the United States Federal Government also using or monitoring/using this website or any of its associated websites, you do NOT have my permission to utilize any of my profile information nor any of the content contained herein including, but not limited to my photos, and/ or the comments made about my photo's or any other "picture" art posted on my profile. You are hereby notified that you are strictly prohibited from disclosing, copying, distributing, disseminating, or taking any other action against me with regard to this profile and the contents herein. The foregoing prohibitions also apply to your employee(s), agent(s), student(s) or any personnel under your direction or control. The contents of this profile are private and legally privileged and confidential information, and the violation of my personal privacy is punishable by law
Photobucket
© 2008 LupusMCTD Foundation of America - All Rights Reserved
Est.November 11, 2005
"We Understand What You Are Going Through"™
Powered by EzPortal

Powered by MySQL Powered by PHP Powered by SMF 1.1.21 | SMF © 2015, Simple Machines
Twitter Mod created by 2by2host.com - a web hosting company