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Author Topic: Lupus Research  (Read 4256 times)
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NDLupus
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« on: September 16, 2008, 06:45:30 pm »

there really should be an awareness campaign for Lupus....right?

Well, I'm working to change that. My name is Anna and I am a senior at the University of Notre Dame. I'm also a Lupus patient, diagnosed 7 years ago. For my senior thesis project, I want to create an awareness campaign for Lupus; this would include things like magazine ads, billboards, signs for buses and other public transportation, television/radio commercials, etc.

As part of my research, I am interested in talking to as many people as possible - both Lupus patients and those who know someone with Lupus or have a Lupus patient in their family. I want to know what kind of message other Lupus patients would want this awareness campaign to have. While I have a few ideas of my own, I certainly cannot speak for all 2 million of us who deal with this disease on a daily basis.

If you are willing to give your thoughts on what an awareness campaign should or should not be, please post a reply. If you are willing to go into more depth about your Lupus experiences, your diagnosis, how you cope with the disease, etc. please email me at asjordan.2@gmail.com

Thank you in advance for you interest and willingness to help me!

Sincerely,
Anna
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« Reply #1 on: September 16, 2008, 07:21:15 pm »

there really should be an awareness campaign for Lupus....right?

Well, I'm working to change that. My name is Anna and I am a senior at the University of Notre Dame. I'm also a Lupus patient, diagnosed 7 years ago. For my senior thesis project, I want to create an awareness campaign for Lupus; this would include things like magazine ads, billboards, signs for buses and other public transportation, television/radio commercials, etc.

As part of my research, I am interested in talking to as many people as possible - both Lupus patients and those who know someone with Lupus or have a Lupus patient in their family. I want to know what kind of message other Lupus patients would want this awareness campaign to have. While I have a few ideas of my own, I certainly cannot speak for all 2 million of us who deal with this disease on a daily basis.

If you are willing to give your thoughts on what an awareness campaign should or should not be, please post a reply. If you are willing to go into more depth about your Lupus experiences, your diagnosis, how you cope with the disease, etc. please email me at asjordan.2@gmail.com

Thank you in advance for you interest and willingness to help me!

Sincerely,
Anna

Anna,
I admire your enthusiasm as I'm sure many reading your repeated posts will too.
As long as we have been on the Internet we have yet to even raise the funds for any of the items you mentioned due to the high cost of advertising.And my husband is a Supervior for city bus bench advertising, which is still too expensive to advertise on.

I would like to put you in the direction of Mr Tyler Malcom who over 23+ years ago submitted his discovery on Lupus.
Dec. 10, 1085 Tyler filed this
http://www.lupusmctd.com/index.php?topic=3329.msg19639#msg19639

Now we are in 2008 and here are some sites that are thinking about "dead cells" in which Tyler holds the Cerificate of Copyright Registration for his theory in which they too are trying to find discovery on.
http://www.lupusmctd.com/index.php?topic=3329.msg18855#msg18855

If you find our personal stories we have here, in order for you to use them, you must get permission from the original owner as well as myself as it is considered work of ours.
Thank you



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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
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NDLupus
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« Reply #2 on: September 16, 2008, 07:32:17 pm »

Thank you so much for your link. What a great story.
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