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Adminஐﻬ
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« on: September 25, 2008, 04:36:00 pm » |
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For our new website design, I asked Connie to make us a picture of the wolf with the word COURAGE on it.
I will pass them out to other websites that go through the hell we go through.
I thought of it last night trying to fall asleep... I thought about the Cowardly Lion on the Wizard of Oz.
He was scared, yet all through the movie he learned he had the courage all along, he just had to face it head on and he'd be OK.
Kind of like us patients.
So when we see a good website, blog, journal, etc. I'll have you email me a link to any site you believe should be awarded the Wolf courage link. I'll go read their website, verify the site is what I am looking for to award them.
If I approve the site for what they are going through or have gone through, I will send them the LupusMCTD Award along with a certificate (I need to make one up).
I hope we can make someones day. I know my first 2 awards put me on cloud 9, and the letter that was sent to me sure did move me to tears.
We'll keep spreading the awareness this way too!
It DOES motivate you keep on helping others by being acknowledge on your website.
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« Last Edit: September 27, 2008, 12:32:09 pm by Adminஐﻬ »
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 I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.  www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients |
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Adminஐﻬ
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« Reply #1 on: September 27, 2008, 12:37:11 pm » |
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Here is the finished product: I'll accept year round website nominations.Include your name, email address and the website URL you wish to nominate. Tell me WHY you feel it should receive our Courage Award for what that site has done to HELP others.
Blogs and Journals may be nominated if the blog is about a special someone who is facing courage for what health issues they are going through or had gone through.Click the "Courage Award" link and send me all the above info I need to check out their site.
<a href="mailto:LupusWebsite@aol.com?subject=Courage Award Nominee"> :Courage Award:[/url]
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« Last Edit: September 27, 2008, 01:45:42 pm by Adminஐﻬ »
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside. www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients |
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Adminஐﻬ
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« Reply #2 on: September 28, 2008, 10:33:27 am » |
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Award #1 Mr Geoff Thomas of Austrailia has Discoid Lupus and last year I stayed in touch with him as he rode his bike from New York City to California. After a few days rest, he turned around got back on his bike and rode back across the United States to New York City where he had friends waiting for him. Geoff battled quite a few weather elements not to mentions the mountains, the desert, etc. Something one of us might be afraid to drive a car over, but Geoff rode his bike over. With Discoid Lupus at that! To learn more about Geoff and his adventure here in the states, he has a book coming out in Spring 2009. But for now, drop by Geoff's website www.bikeusa2007.com - And Beyond! and drop Geoff a salutation for being our first ever courage award winner....he sure does deserve it! ~Kathy |
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« Last Edit: September 24, 2010, 02:39:13 pm by Adminஐﻬ »
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside. www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients |
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Adminஐﻬ
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« Reply #3 on: October 05, 2008, 08:54:40 pm » |
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 Bumping up this award which I would like to present to other sites, bloggers and journals. Please nominate them by sending me their website address for me to check out. The person behind the site, blog, journal etc must of had faced something in their lifetime to be eligable for the COURAGE AWARD. Please make sure you write a bit about the person as well as their website and as to why you want them to have such a deserving award. They may just recieve it, but you have to nominate them, send me their site to LupusWebsite@aol.comIf you don't know someone then forward it to someone else who may know someone, we want the *Wolfie Award* to start showing up in the internet. Thank you! Kathy
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« Last Edit: October 06, 2008, 10:51:28 am by Adminஐﻬ »
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside. www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients |
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Adminஐﻬ
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« Reply #4 on: October 23, 2008, 08:31:28 pm » |
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Bumping this up as so far we have only had one Lupus patient it was awarded to, Geoff Thomas
from Austrailia who rode his bike from NYC last year all the way to California and then back to NYC.Geoff is putting the finishing touches of his book that is due out in the spring of 2009.
To nominate someone , you do not have to ride a bike across America. Just be a proactive patient that is trying to bring awareness.
The *Wolfie Award* is to put on your website page.
If you know of anyone on a website or My Space, please feel free to nominate them!!!
Let me know the link to thier site so I may check it out.
Thank you!
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside. www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients |
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Adminஐﻬ
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« Reply #5 on: November 17, 2008, 12:41:28 pm » |
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Bumping this up for others to see we have an award that can be given to other websites. Please post their website URL address for me to visit so I can read their stories of the *Courage* they have faced during their time with Lupus or a MCTD. Post their URL address here or email it to me at LupusWebsite@aol.comI'd love to see more sites proudly showing off their Courage Award "Wolfie Award" on their site for their efforts they have faced during their health crisis. ~Kathy |
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« Last Edit: November 17, 2008, 01:48:04 pm by Adminஐﻬ »
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside. www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients |
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Geoff
We're all in this together
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Posts: 24
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« Reply #6 on: November 28, 2008, 03:50:25 am » |
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Dear Kathy,As first on your Wolfie List, I thought it only appropriate that I nominate a follower. I have recently discovered one of the most impressive lupus awareness efforts by Dianna in Canada. The Flare Foundation's website really blew me away and it's just a great original, professional fundraising idea. Not to sure if it falls into your Wolfie category, but it sure rates a mention: http://www.flareforfashion.ca/Regards,
Geoff Thomas
The Wide World of Lupus
http://thewideworldoflupus.blogspot.com/
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Geoff was diagnosed with cutaneous lupus after cycling across Australia in 2003. He has since ridden 9018 miles around America to raise awareness for lupus, representing The Lupus Foundation of America and The Alliance for Lupus research. Most recently, he's delivered speeches at lupus seminars in Australia, created a worldwide blog and he's due to publish a number of books about his journey. He continues to spread the word. You're invited to come along for the ride!
Many thanks to Kathy for her support and a great site!
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Adminஐﻬ
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« Reply #7 on: November 28, 2008, 08:41:52 pm » |
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Dear Kathy,As first on your Wolfie List, I thought it only appropriate that I nominate a follower. I have recently discovered one of the most impressive lupus awareness efforts by Dianna in Canada. The Flare Foundation's website really blew me away and it's just a great original, professional fundraising idea. Not to sure if it falls into your Wolfie category, but it sure rates a mention: http://www.flareforfashion.ca/Regards,
Geoff Thomas
The Wide World of Lupus
http://thewideworldoflupus.blogspot.com/ Geoff, I'll send them an email and see what they say if they would be intrested in accepting it. I like what I read so far in their efforts to help bring awareness to Lupus. Thank you Geoff! Kathy |
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside. www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients |
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3sisters
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« Reply #8 on: January 25, 2009, 04:00:24 pm » |
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 I just sent the Courage Award to a female Lupus patient named Angie.
She has a Myspace page:
http://profile.myspace.com/index.cfmfuseaction=user.viewProfile&friendID=403217710
and a blog called,
"Ardent Cerebrations, Musings of a Lupus Survivor" http://alupussurvivor.blogspot.com/
Miss Angie is an awesome demonstration of Lupus Warrior Courage
and has a gift for helping other's. Her contribution is a strong link in the Warrior chain!
Thank you Angie for your example!
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Living with NP-SLE/ MCTD and MS. Powered by the Indigenous 7th Sense and lots of meds... Living with an invisible illness sucks. But living with an UN-diagnosed and UN-treated illness REALLY sucks.
"Where HOPE is a Work in Progress™"
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Adminஐﻬ
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« Reply #9 on: January 26, 2009, 01:04:42 pm » |
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Visit Ardent Cerebrations: Musings of Lupus Survivors! at: http://alupussurvivor.ning.comShe accepted our courage award!!! What a lady and an inspiration to others! |
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside. www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients |
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Lupus/MCTD Awareness