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Author Topic: Sorry I've been missing - again!  (Read 4991 times)
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Geoff
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« on: December 27, 2008, 03:38:33 am »

First of all, a belated Season's Greetings to all!

I'm sorry I haven't had the chance to post here lately or even log-in.

Unfortunately I've had a few lupus related issues, and it's not really to do with my health, but stress has come into it - not good...

Basically, Kathy knows the full story and has been so supportive - as have others around the world - when I stood up for myself and others battling all forms of this disease.

I actually feel as though I've been bullied on the internet, when all I've done over the past two years is put my heart, time, body and cash into helping others.  And over the past few weeks/months I've been constantly hit with negativity by one person in particular.  The timing wasn't great as it was over the Christmas period.  But I knew deep down where I stood - and still do! 

Unfortunately I can't elaborate on what's been going on - because this faceless person will do his best to discredit me where he can.  And I won't lower myself to debating a person who hasn't bled, struggled, and devoted so much of their life for our cause and awareness - I didn't let big mountains beat me, I didn't let the deserts of America beat me and this childish person will not beat me.

It's just such a shame that one person can devalue our cause for awareness and a cure.  I'm not here for myself - my recent history proves that to people who know me. 

I went totally public with my lupus to help others.  But I didn't expect to be confronted for doing so.  But that doesn't matter.  What does matter to me are those who are doing it tougher than myself - and that has always been the case and will continue to be the case.

Sorry...  I might be a little more cheerful next time  grin

Just thanking you all and wishing you a happy and healthy 2009

Regards as always,
Geoff
LUAW

The Wide World of Lupus
http://thewideworldoflupus.blogspot.com/

One day, the full story will evolve  smiley
« Last Edit: December 28, 2008, 01:53:23 am by Geoff » Logged

Geoff was diagnosed with cutaneous lupus after cycling across Australia in 2003.  He has since ridden 9018 miles around America to raise awareness for lupus, representing The Lupus Foundation of America and The Alliance for Lupus research.  Most recently, he's delivered speeches at lupus seminars in Australia,  created a worldwide blog and he's due to publish a number of books about his journey.  He continues to spread the word.  You're invited to come along for the ride!

Many thanks to Kathy for her support and a great site!
3sisters
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« Reply #1 on: December 27, 2008, 04:38:30 am »

Hi Geoff,

I'm sorry that you had to experience a situation like this. It's uncomfortable and frustrating.

Keep the Lupus warrior faith going. Just file this experience for future reference and keep moving forward. Consider it a blessing, that this worm of a human is not supposed to be in your circle. Kathy and I believe in fate and synchronicity, and that we are brought together with other's to serve a common good. This cat is obviously not likeminded with you.

Yes, there seems to be a species of malicious humans in the Lupus Society. It's hard to fathom, that the existence of such a breed could exist among Lupus patient circles; yet they do. We've had our share of experiences with some.

The phonies always weed themselves out.

You pave your own path, and keep forging forth. You will make connections with likeminded people, and be unified in a common mission. 
No greater joy than serving other's!

Be Well, Geoff , "Keep the Light Going" (Tesa) and thank you for your service and example to many other's.
Kindest Regards,
Kim
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« Reply #2 on: December 27, 2008, 02:36:12 pm »

Quote
Basically, Kathy knows the full story and has been so supportive - as have others around the world - when I stood up for myself and others battling all forms of this disease.

Geoff,
I will always stand behind you and anyone else who is doing good for us.
I don't allow any BS on this forum. smilen
They get the boot from here as I run a tight ship for those who are seriously in need of support, information, guidance and friendship.
Playing games is an actual link I have on here they are free to go play with.
Hang in there Geoff,
I'm always  around if you need someone to chat with,
Kathy
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
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Geoff
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« Reply #3 on: December 28, 2008, 01:57:57 am »

A day later and I'm happy now!:grin:

Thanks so much for your support Kathy & 3sisters...

It was just a difficult time for me as I know where my heart is.

Your understanding will never be forgotten.

Geoff.
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Geoff was diagnosed with cutaneous lupus after cycling across Australia in 2003.  He has since ridden 9018 miles around America to raise awareness for lupus, representing The Lupus Foundation of America and The Alliance for Lupus research.  Most recently, he's delivered speeches at lupus seminars in Australia,  created a worldwide blog and he's due to publish a number of books about his journey.  He continues to spread the word.  You're invited to come along for the ride!

Many thanks to Kathy for her support and a great site!
Adminஐﻬ
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Gender: Female
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« Reply #4 on: December 28, 2008, 09:51:26 pm »

A day later and I'm happy now!:grin:

Thanks so much for your support Kathy & 3sisters...

It was just a difficult time for me as I know where my heart is.

Your understanding will never be forgotten.

Geoff.

Geoff,
You are a part of this family and we are a part of yours.
We're in this together.
We'll always be here for you.
You have my email address , in fact you have my home phone number too.
We're here for you,
Kathy
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
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