Welcome To www.LupusMCTD.com
March 29, 2024, 08:09:23 am *
Welcome, Guest. Please login or register.

Login with username, password and session length
 
   Home   Forum Help Search Calendar Login Register  
Pages: 1   Go Down
  Print  
Author Topic: DEAR DOCTOR  (Read 9570 times)
0 Members and 1 Guest are viewing this topic.
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« on: January 22, 2009, 12:22:43 pm »

Love, Holly


P.S.  Kat, maybe this is a repeat idea but I wa thinking what if we had like a DEAR DR. folder.  I was thinking it would be cool for not only us but the medical community.... SPECIFICALLY... I was thiinking it could be like a letter telling the dr. or nurse etc. what they thought of HOW THEIR DR. VISIT WENT AND WHY and WHAT WAS THE RESULT?    let me give you an example:

Song of Hearts requests this thread

Dear Dr.
What a waste of time and money!   I was referred to you by my prmary dr.  You were running late and I knew the minute you walked in that you already had me sized up and didn't want to spend more than five minutes.
I came for a specific test, yet you said no.  Instead, you subjected me to another in your office test that was expensive and I had told you already I just had one of those done recently with it being normal.

I was angry, hurt and furious when I left.  I just needed one simple test to confirm a  dx.    I went back and told my primary dr. and he felt bad for what had happened.   

If you had looked at my records more carefully you might have caught that I have some brain damage with short term memory loss.    Well guess what you cold SOB... I don't know if you just had a bad day but you don't have to take it out on me OR CHARGE ME FOR IT.   I don't feel like paying your bill cuz noly did I HAVE TO WAIT FOR HOURS but you did me a disservice, cuz guess what???

I DID HAVE THE CONDITION I CAME IN TO SEE YOU FOR.  YOU TOLD ME WITHIN TWO MINUTES OF ME ASKING ABOUT IT THAT IT WAS IMPOSSIBLE.   I CHECKED BACK AT SOME OLD RECORDS AND FOUND OUT ANOTHER SPECIALIST HAD DX'D ME SOME FIVE YEARS EARLIER and I HAD FORGOTTEN, because if you hadn't been so dang judgemental at the onset of my long list of illness, medications, etc. you might have really noticed that all the major things were already listed.

SEE YA NEVER.... OH, and my Primary said he wouldn't e referring anyone else to you again either.... but I deobt he would tell you that to your face.
Thanks for nothing and for making me feel, once again, like it's alli in my head

DISGRUNTLED PATIENT

This is a true example and perhaps it would be a good place for people to address the drs directly???  Even though WE read it.  I think we tried something like this under DR vISITS where people were supposed to share how things went, and i was wondering how that thread is doing???   If this is a mute point.... no worries.
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #1 on: September 09, 2009, 12:58:07 am »

Below is my bone density test (my second one in two years)
I'm a bit shaken up after reading it tonight where it says I'm at fracture risk for severe in my spine... the moderate in my hip I can live with as the hip can be replaced but not the spine.

Just curious if anyone knows anything about the results and could you shed some light on it for me.
Thank you in advance,
Kathy  LUAW



Dexa Bone Density Axial Skeleton
Printer friendly page

Click for general information about Dexa Bone Density Axial SkeletonAbout This Test
If you have questions or concerns regarding your test results, contact the provider who ordered the test.

While various diseases and conditions may be discussed in an imaging report, this does not indicate a disease is present. An imaging report may describe common variations of normal anatomy, as well as possible disease, and can only be interpreted in the context of a patient's medical history, examination, and other test results. Your physician will contact you to discuss any notable findings.    
 
Test:    Dexa Bone Density Axial Skeleton    
Resulted Date:    9/2/2009    Status:    Final Result    
 
ORD PHYS: JC Hornberger, MD    
    
BONE DENSITOMETRY OF THE SPINE AND HIP, 9/1/09    
    
FINDINGS    
AP spine measurements at L2-L4 vertebral levels demonstrate    
osteoporosis with a T-score of -2.8 standard deviations below young    
adults and a Z-score of -1.8 standard deviations below age matched    
controls.    
    
Right femoral neck BMD demonstrates osteopenia with a T-score of    
-2.3 standard deviations below young adults and a Z-score of -1.1    
standard deviations below age matched controls.    
    
FRACTURE RISK    
Severe in the spine and moderate in the hip.    
    
COMPARISONS    
Comparison with the prior scan of 5/8/07 demonstrates a -8.6%    
decrease in BMD in the spine and a -7.6% decrease in BMD in the hip.    
    
RECOMMENDATIONS    
Increase calcium intake from current estimate of 650 mg daily to a    
recommended dosage of 1500 mg q day. Add vitamin D3 400-800 IU q    
day.  Encourage exercises such as walking and mild weightlifting.    
Treat with antiresorptive drug therapy.    
    
FOLLOWUP    
Follow up BMD should be based on therapeutic considerations,    
probably in one to two years.    
    
______________________________________    
Surendra Sood, MD, Dept. of Imaging    
SS/jlg, T: 09/02/2009 1339    
D: 09/02/2009 0944, J: 491595    
 
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #2 on: September 11, 2009, 11:14:51 pm »

today the Dr put me on Actonol. One a day.. it's like Boniva that Sally Field advertises.
I have to take on empty stomach, sit up for 30 minutes awfterwards.
Will take first one in the morning.
Need to go get the vitimans smiley CandleSmilie
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Songofhearts
Full Seeker of Support
***
Offline Offline

Gender: Female
Posts: 594


Fear is a lack of faith...


« Reply #3 on: July 21, 2010, 11:08:53 pm »

I'm jumping in here after a long absence so I hope I don't offend anyone!

Dear Rhuematologist:

Today was my first appointment with you.  I had forgotten that Rhuemies are usually very meticulous and especially so on the first appt. You allowed for a good amount of time for history taking and conversation.  I was expecting to just stick to a few bullet points and be a "good" patient by not taking too much of your time.

You surprised me by asking me when all my symptoms began, at what age and what those symptoms were.  You were kind and caring and very attentive.  Your staff was friendly and everyone put me at ease.  You were up front about the fact that dx'ng autoimmune disorders can be difficult.  You didn't make me feel stupid and you ordered tests that I expected and some that I didn't know what they were for.

Most of all, you started me on Plaquenil which turned out to be the best thing that has ever happened to me.  I didn't have any side effects and here it is 2 months later and I feel awesome.

Thanks for being one of the nicest doctors I have ever met and for being sooo good at what you do.  I feel that you and I can have a great relationship for many years and that when and IF a crisis happens, you will be there for me.

Sincerely,
Your new patient, Holly
Logged

Holly (the original one)

"I think God puts me on my back so that I can look up more often..."
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #4 on: July 23, 2010, 01:31:11 pm »

I'm jumping in here after a long absence so I hope I don't offend anyone!

Dear Rhuematologist:

Today was my first appointment with you.  I had forgotten that Rhuemies are usually very meticulous and especially so on the first appt. You allowed for a good amount of time for history taking and conversation.  I was expecting to just stick to a few bullet points and be a "good" patient by not taking too much of your time.

You surprised me by asking me when all my symptoms began, at what age and what those symptoms were.  You were kind and caring and very attentive.  Your staff was friendly and everyone put me at ease.  You were up front about the fact that dx'ng autoimmune disorders can be difficult.  You didn't make me feel stupid and you ordered tests that I expected and some that I didn't know what they were for.

Most of all, you started me on Plaquenil which turned out to be the best thing that has ever happened to me.  I didn't have any side effects and here it is 2 months later and I feel awesome.

Thanks for being one of the nicest doctors I have ever met and for being sooo good at what you do.  I feel that you and I can have a great relationship for many years and that when and IF a crisis happens, you will be there for me.

Sincerely,
Your new patient, Holly
Great post Holly! ...
Wish I could say this to new Drs.. and even to ALL past Drs... (a little too late though on them!)
((Hugs))
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
kyliehalladay
Seeker of Support
*
Offline Offline

Gender: Female
Posts: 3



« Reply #5 on: December 06, 2010, 03:39:47 pm »

I am 14 years old. I was diagnosed with SLE Lupus and JRA in 2008. In January of this year my dr started me on Methotrexate weekly. I really hate the way it makes me sick (nauseated, vomiting, dizziness, cold sweats - even with anti-nausea meds). I just stopped it cold turkey on Halloween against my dr's advice. I have been trying to contact my own dr since then to discuss this but I have not received a call back in almost 3 months. I live in Utah and my dr is in LAs Vegas (She is the closest one to me), so I can not just stop by her office. Can you tell me what I can expect to happen ,if anything, because i did this?? I don't feel any worse or better since I stopped. I still get the rash on my face. I still am very stiff and sore every morning. I still have so much pain some days I can not get out of bed.

Please help in anyway you can!!!

Thanks Again,
 Kylie  smiliereading
Logged

Kylie Halladay
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #6 on: December 11, 2010, 01:20:54 pm »

I am 14 years old. I was diagnosed with SLE Lupus and JRA in 2008. In January of this year my dr started me on Methotrexate weekly. I really hate the way it makes me sick (nauseated, vomiting, dizziness, cold sweats - even with anti-nausea meds). I just stopped it cold turkey on Halloween against my dr's advice. I have been trying to contact my own dr since then to discuss this but I have not received a call back in almost 3 months. I live in Utah and my dr is in LAs Vegas (She is the closest one to me), so I can not just stop by her office. Can you tell me what I can expect to happen ,if anything, because i did this?? I don't feel any worse or better since I stopped. I still get the rash on my face. I still am very stiff and sore every morning. I still have so much pain some days I can not get out of bed.

Please help in anyway you can!!!

Thanks Again,
 Kylie  smiliereading

(((Kylie))))
Gentle hugs! Sorry you had no relief and so many side effects on the Methotrexate.
Did you try Phenergran for the nausea before stopping see if that would help you out?

Halloween was about 2 months  ago and if anything was to happen since you stopped back then, it would of already happened to you by now.
Can't you get your local Primary Dr to prescribe your meds for you? Is it really necessary to go to Vegas to get your meds from him?

I'm not a Dr and have never been on Methotrexate. I wish I could help you out and tell you what to expect.
But honestly when you stopped back in Halloween *something* should of happened then not now to you if anything was gonna happen.
GOdd luck with contacting your Dr.
Try to get your Primary in Utah to take care of you.
Hugs!
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Pages: 1   Go Up
  Print  
 
Jump to:  


© Page Contents, Layout, Graphics and Design All Copyrighted by Credited Artists and are Not Public Domain.



LupusMCTD Founder & Patient
Former Domestic Violence SURVIVOR
Kathy A. Patterson

Author of the Upcoming Memoir Book:
"Fighting From The Inside Out"..
A lupus patient fights the beast within her immune system and the beast at home....

e-Booklet filled with photos and videos of what abuse was, signs to look for,
where to turn to for help, and much more to help others like me...


For more information
Call the National Domestic Violence Hotline at 1−800−799−SAFE(7233)



"The Meaning of the Words in the Second Amendment .... "That the people have a right to freedom of speech, and of writing, and publishing their sentiments;"

PRIVACY NOTICE: Warning--any person and/or institution and/or Agent and/or Agency of any governmental structure including but not limited to the United States Federal Government also using or monitoring/using this website or any of its associated websites, you do NOT have my permission to utilize any of my profile information nor any of the content contained herein including, but not limited to my photos, and/ or the comments made about my photo's or any other "picture" art posted on my profile. You are hereby notified that you are strictly prohibited from disclosing, copying, distributing, disseminating, or taking any other action against me with regard to this profile and the contents herein. The foregoing prohibitions also apply to your employee(s), agent(s), student(s) or any personnel under your direction or control. The contents of this profile are private and legally privileged and confidential information, and the violation of my personal privacy is punishable by law
Photobucket
© 2008 LupusMCTD Foundation of America - All Rights Reserved
Est.November 11, 2005
"We Understand What You Are Going Through"™
Powered by EzPortal

Powered by MySQL Powered by PHP Powered by SMF 1.1.21 | SMF © 2015, Simple Machines
Twitter Mod created by 2by2host.com - a web hosting company