Welcome To www.LupusMCTD.com
April 18, 2024, 01:34:24 pm *
Welcome, Guest. Please login or register.

Login with username, password and session length
 
   Home   Forum Help Search Calendar Login Register  
Pages: 1 2 »   Go Down
  Print  
Author Topic: Second Annual Patients Picnic in The Park~ May 3,2009  (Read 38232 times)
0 Members and 1 Guest are viewing this topic.
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« on: February 17, 2009, 12:29:28 pm »

We hope you do join us!!!

Northern California is planned for Sunday May 3rd

before Cinco De Mayo (May 5)
as well as Mother's Day. (May 10)
And far away from Memorial Day!!!

Also at the park the Japanese Gardens FREE to visit!
http://mgzoo.com/rental-facilities/japanese-garden.htm

Also at the park!
The San Joaquin County Historical Museum
http://www.sanjoaquinhistory.org/

ALSO At Micke Grove:
*Fun Town at Micke Grove, offering amusement rides, carnival-inspired treats and more!
*Softball fields, water play features, horseshoe pits and children’s playgrounds.


~NOTE: If you live outside the area and would like to hold your own Patients Picnic in the Park, please email me  <a href="mailto:LupusWebsite@aol.com?subject=Information Needed for Patients in the Park">:Email LupusMCTD:[/url]
[
hr]

MEET UP WITH YOUR FRIENDS!


EAT & READ UP ON THE LATEST MEDICAL BOOKS!


MEET OTHERS FOR THE FIRST TIME!

COMPARE YOUR SYMPTOMS!

FREE BABYSITTING ENTERTAINMENT BY DAVE!

DEMONSTRATION ON MAKING RICE SOCKS!


NORTHERN CALIFORNIA MAP
San Joaquin Valley
11:00 AM~4:00 PM
Sunday May 3rd 2009
Micke Grove Park
Lodi, CA
"Oh Lord, Stuck in Lodi Again".....CCR

« Last Edit: February 23, 2009, 05:55:37 pm by Adminஐﻬ » Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #1 on: February 23, 2009, 03:09:40 pm »

BUMPING UP FOR NEWEST MEMBERS TO SEE THIS, IN THE EVENT THEY CAN ATTEND.
April 15th cut off date for reservations!



We hope you do join us!!!

Northern California is planned for Sunday May 3rd

before Cinco De Mayo (May 5)
as well as Mother's Day. (May 10)
And far away from Memorial Day!!!

Also at the park the Japanese Gardens FREE to visit!
http://mgzoo.com/rental-facilities/japanese-garden.htm

Also at the park!
The San Joaquin County Historical Museum
http://www.sanjoaquinhistory.org/

ALSO At Micke Grove:
*Fun Town at Micke Grove, offering amusement rides, carnival-inspired treats and more!
*Softball fields, water play features, horseshoe pits and children’s playgrounds.


~NOTE: If you live outside the area and would like to hold your own Patients Picnic in the Park, please email me  <a href="mailto:LupusWebsite@aol.com?subject=Information Needed for Patients in the Park">:Email LupusMCTD:[/url]
[
hr]

MEET UP WITH YOUR FRIENDS!


EAT & READ UP ON THE LATEST MEDICAL BOOKS!


MEET OTHERS FOR THE FIRST TIME!

COMPARE YOUR SYMPTOMS!

FREE BABYSITTING ENTERTAINMENT BY DAVE!

DEMONSTRATION ON MAKING RICE SOCKS!


NORTHERN CALIFORNIA MAP
San Joaquin Valley
11:00 AM~4:00 PM
Sunday May 3rd 2009
Micke Grove Park
Lodi, CA
"Oh Lord, Stuck in Lodi Again".....CCR


« Last Edit: February 23, 2009, 05:58:09 pm by Adminஐﻬ » Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #2 on: March 16, 2009, 01:27:47 pm »

The second annual picnic is still ago for May 3rd @ Micke Grove Park, Lodi, CA
Games, Prizes, Food!!
Sign up here
<a href=mailto:LupusWebsite@aol.com?subject=I Will Be ATTENDING~PICNIC>:I will be ATTENDING~PICNIC:[/url]
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #3 on: March 22, 2009, 11:52:06 am »

The second annual picnic is on Sunday May 3rd
I am hosting the Northern California picnic at Micke Grove Park, Lodi, CA

Sign up here  <a href=mailto:LupusWebsite@aol.com?subject=I Will Be ATTENDING~PICNIC>:I will be ATTENDING~PICNIC:[/url]


Open ATTACHEMENT below (Microsoft Office Publisher only)
If you are holding your own BBQ Patients in the Park Picnic, change the details to your own information.
Distribute and post on your site, blog, Facebook, My Space, Twitter, etc.

If you can not host a picnic, feel free to download & distribute to advocate for Lupus and MCTD.
Thank You!



Need Help??
 <a href=mailto:LupusWebsite@aol.com?subject=I need help with PICNIC FLYER>:I need help with PICNIC FLYER:[/url]

* Second Picnic Park FLyer.pub (368 KB - downloaded 1142 times.)
« Last Edit: March 22, 2009, 11:56:58 am by Adminஐﻬ » Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Malfina
Seeker of Support
*
Offline Offline

Posts: 150


« Reply #4 on: March 25, 2009, 10:05:30 pm »


Kathy,
 I just checked for flights out to cali in may. I have no clue why that it is cheaper. I found a round trip for $245. Which this is cheaper than my last visit last year. I am going to talk to my manager about changing my vacation. I put one in for my b-day. If she allow me to change. And manage to get some money scraped together. Then count me in for the picnic.  I was looking around for flights in nov and they are very expensive. This is managable for me. I will keep u posted on this....
 Hugs
 Andrea
Logged
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #5 on: March 26, 2009, 10:35:30 am »


Kathy,
 I just checked for flights out to cali in may. I have no clue why that it is cheaper. I found a round trip for $245. Which this is cheaper than my last visit last year. I am going to talk to my manager about changing my vacation. I put one in for my b-day. If she allow me to change. And manage to get some money scraped together. Then count me in for the picnic.  I was looking around for flights in nov and they are very expensive. This is managable for me. I will keep u posted on this....
 Hugs
 Andrea
HOW COOL!!!!
Yeah I figured November being Thanksgiving time the airlines and hotels were out to bone everyone dry.
I hope this will work out for you as I want a chance to meet you..

Today I have got to fax the flier to the independent living place and see if anyone from their group would like to attend from Stockton.
Last year they sent a real nice lady.
She does an intake evaluation on the event and discuss it at her meeting. I assume it was to see what all I had to provide information wise to the disabled.
I had 2 picnic tables full of booklets on every imaginable autoimmune disorder there is smiley

There is a zoo & carnival rides at Micke Grove

Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #6 on: April 01, 2009, 04:59:48 pm »

The second annual picnic is on Sunday May 3rd
I am hosting the Northern California picnic at Micke Grove Park, Lodi, CA

Sign up here  <a href=mailto:LupusWebsite@aol.com?subject=I Will Be ATTENDING~PICNIC>:I will be ATTENDING~PICNIC:[/url]


Open ATTACHEMENT below (Microsoft Office Publisher only)
If you are holding your own BBQ Patients in the Park Picnic, change the details to your own information.
Distribute and post on your site, blog, Facebook, My Space, Twitter, etc.

If you can not host a picnic, feel free to download & distribute to advocate for Lupus and MCTD.
Thank You!



Need Help??
 <a href=mailto:LupusWebsite@aol.com?subject=I need help with PICNIC FLYER>:I need help with PICNIC FLYER:[/url]

MICKE GROVE MAP--->http://mgzoo.com/parks/micke-grove-park.htm

* Second Picnic Park FLyer.pub (368 KB - downloaded 607 times.)
« Last Edit: April 01, 2009, 05:02:28 pm by Adminஐﻬ » Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Malfina
Seeker of Support
*
Offline Offline

Posts: 150


« Reply #7 on: April 03, 2009, 08:44:05 pm »


Kathy..
 Sorry I should have written on here sooner. I will be flying out to Cali. I actually wont be flying out until May 2. So..I will be there for the picnic. And I will be jet lagged. But thats fine. I am staying out there until May 13. The tickets were cheap. I got a round trip for $230.  A lot cheaper than last year. Now I get to finally meet u. I will give u a call sometime before I fly out.
Andrea
Logged
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #8 on: April 04, 2009, 07:50:04 am »


Kathy..
 Sorry I should have written on here sooner. I will be flying out to Cali. I actually wont be flying out until May 2. So..I will be there for the picnic. And I will be jet lagged. But thats fine. I am staying out there until May 13. The tickets were cheap. I got a round trip for $230.  A lot cheaper than last year. Now I get to finally meet u. I will give u a call sometime before I fly out.
Andrea
WHOO HOO ANDREA!!!
I can't wait, if I can help let me know.
I don't drive, but on weekends husband is off work and he can drive if need be.
Kathy
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Malfina
Seeker of Support
*
Offline Offline

Posts: 150


« Reply #9 on: April 04, 2009, 07:20:04 pm »


Kathy...
 My mom is picking me up. I will be staying with her.  She will be doing the driving. This time I will convince her to let me drive her car. LOL!!
Andrea
Logged
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #10 on: April 05, 2009, 07:17:56 am »


Kathy...
 My mom is picking me up. I will be staying with her.  She will be doing the driving. This time I will convince her to let me drive her car. LOL!!
Andrea
smiley

FUN!
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #11 on: April 05, 2009, 07:21:33 am »

Canada Press Release in PDF

* Picnic2Canada PR.pdf (4.04 KB - downloaded 744 times.)
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
3sisters
Lupus patient with overlapping accessories
Newsletter Editor
******
Offline Offline

Gender: Female
Posts: 1034



« Reply #12 on: April 05, 2009, 07:03:55 pm »


Dear Andrea,

I look forward to meeting you at the picnic. I live here in Sacto too, and if for any reason you need transportation just PM me, OK?

How cool this day will be!!!! Yahoo! 
Logged

Living with NP-SLE/ MCTD and MS. Powered by the Indigenous 7th Sense and lots of meds... Living with an invisible illness sucks. But living with an UN-diagnosed and UN-treated illness REALLY sucks.
"Where HOPE is a Work in Progress™"
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #13 on: April 06, 2009, 05:41:50 pm »

The Chiropractic office of Dr. Shapiro in Stockton, CA will be there for a demonstration as well as a lecture.

3 Adults, 0 Children attending
Veggie Tray & Dip

Visit their website at http://www.shapirochiropractic.com/

Shapiro Chiropractic & Wellness Center

4565 Quail Lakes Dr., Suite A-1
Stockton, CA 95207

Phone: 209.888.8602
Fax: 209.888.8603

Looking forward to meeting you Dr. Shapiro, and office workers!!
Kathy  LUAW


Our news release in the Lodi newspaper
« Last Edit: April 07, 2009, 02:21:14 pm by Adminஐﻬ » Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Malfina
Seeker of Support
*
Offline Offline

Posts: 150


« Reply #14 on: April 06, 2009, 11:26:13 pm »


3 Sisters,
 Thats fine. I wont be needing any transportation. My mother is going to all the driving. She lives in Sutter Creek. I don't know if are familar with the town. Its a itty bitty town near Sac. This year I will convince her to let me drive her car some of the time...hehehe I will be looking forward meeting u. Can't wait. It's like the date is dragging sooooo slow...Ugh!!  I will just throw myself into working to make it go by faster.  LOL!
 Take Care..
 Andrea
Logged
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #15 on: April 11, 2009, 05:14:34 pm »

Last of invitations of flyers were mailed out today to the following for Northern California:
  • Central Valley Pain Management and Wellness Center
  • Center for Sight of Manteca
  • Valley Nephrology of Modesto
  • West Dermatology of Northern California in Oakdale
  • Osteroporisis Center of Modesto
  • DRAIL both in Stockton and in Modesto locations.


If anyone is holding their picnic on May 3 for the Patients in the Park, and you need help let me know and I will help you out . It's pretty simple...

a) Set a time on May3 to meet at a park, backyard, community center, etc.
b) Invite family, friends and have them bring someone
c) Everyone bring a potluck dish
d) Print information off this site for information to share with others "what is Lupus", "What is MCTD?"
ENJOY the day! And you just helped spread the awareness!
Don't forget to take pictures to share with us!!!
 LUAW



[/list]
« Last Edit: April 11, 2009, 05:15:39 pm by Adminஐﻬ » Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #16 on: April 13, 2009, 10:23:57 pm »

Sandra and boyfriend will be attending on behalf of DRAIL.

2 adults
total of 12 confirmed in attendance now.


My son said tonight he will help donate
Sodas, water, meat, buns,etc
« Last Edit: April 13, 2009, 10:32:06 pm by Adminஐﻬ » Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Malfina
Seeker of Support
*
Offline Offline

Posts: 150


« Reply #17 on: April 19, 2009, 11:05:57 am »


 Kathy....
  Two more weeks and counting until I fly out... bflydance  Do u want my mom and I to bring something? I will tell her about it when I call her this weekend. Let me know.
 Take Care..
 Andrea
Logged
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #18 on: April 19, 2009, 11:44:56 pm »


 Kathy....
  Two more weeks and counting until I fly out... bflydance  Do u want my mom and I to bring something? I will tell her about it when I call her this weekend. Let me know.
 Take Care..
 Andrea
If she wants to bring chips or cookies for dessert (something that won't melt) that's fine.I'm sure it will be hot it felt like 90* today.

I have two areas stacked with boxes to bring.
Out in the garage is cases of the booklets.(I just ordered more, hope they get here before the picnic)
Then in my spare room what I need to bring , items for sale, decorations, etc.

My roses are in bloom right now I have 2 lavender colored rose bushes I'd like t bring and put in vases as I have white table cloths for the tables. wink


Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #19 on: April 20, 2009, 08:44:55 pm »

NORTHERN CALIFORNIA -MICKE GROVE PARK ATTENDANCE

CONFIRMED Guest List:
1)Kim
2)Heather
3)Dom
4)Kathy
5)Dave
6)Andrea
7)Andreas Mom
8)Dr. Shapiro-owner
9)Bambi-office worker
10)other- office worker
11)Sandra-DRAIL(Disability worker)
12)Sandra's Boyfriend


~~Let's get more to attend. I need a final head count ASAP
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
3sisters
Lupus patient with overlapping accessories
Newsletter Editor
******
Offline Offline

Gender: Female
Posts: 1034



« Reply #20 on: April 20, 2009, 10:06:41 pm »


One of Dominique's friends is also attending!  bflybouncy
Logged

Living with NP-SLE/ MCTD and MS. Powered by the Indigenous 7th Sense and lots of meds... Living with an invisible illness sucks. But living with an UN-diagnosed and UN-treated illness REALLY sucks.
"Where HOPE is a Work in Progress™"
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #21 on: April 21, 2009, 01:38:24 pm »


NORTHERN CALIFORNIA -MICKE GROVE PARK ATTENDANCE

CONFIRMED Guest List:
1)Kim
2)Heather
3)Dom
4)Kathy
5)Dave
6)Andrea
7)Andreas Mom
8)Dr. Shapiro-owner
9)Bambi-office worker
10)other- office worker
11)Sandra-DRAIL(Disability worker)
12)Sandra's Boyfriend
13)Dominique's friend


~~Let's get more to attend. I need a final head count ASAP

[/quote]
Thank you for the update Kim!
Anymore for Northern California Picnic?
Located in Lodi, CA on May 3 @ 11 AM
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Malfina
Seeker of Support
*
Offline Offline

Posts: 150


« Reply #22 on: April 28, 2009, 09:19:50 pm »


 Kathy...
 My mom just called. She told me that it was supposed to rain on Sun. I have not looked at the weather forcast yet. Just wanted to let u know and give u the heads up. 3 more days until I fly out. I am getting antsy really bad. I need my vacation...LOL!!
Andrea
Logged
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #23 on: April 29, 2009, 09:00:07 pm »


 Kathy...
 My mom just called. She told me that it was supposed to rain on Sun. I have not looked at the weather forcast yet. Just wanted to let u know and give u the heads up. 3 more days until I fly out. I am getting antsy really bad. I need my vacation...LOL!!
Andrea
Andrea
THat is what I am hearing a chance of rain.
Figures last year we were in a heat wave of over 100* now rain :(
We do have an RV tent cover *thing* we are bringing to set up over some tables in event it rains.
I need to go purchase large tarps tomorrow as I know the RV size  replacement is gonna be expensive.
Get your bags packed! The countdown is on!
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Malfina
Seeker of Support
*
Offline Offline

Posts: 150


« Reply #24 on: April 29, 2009, 11:12:27 pm »


Kathy..
 Uh yeah...my suitcase is not even packed yet. But my carryon is. Go Figuire. hehe.. I told my mom that u are prepared in the off chance if it is going to rain. Oh darn it I have to remind her to get some cookies for Sun. I will call her on Thurs nite. I worked my last day today. Gee, the next time I work will be May 15. LOL! I need it. I just found out that when I come back they will take out the deli registers. So I will be up front for now on. I am sooo glad I am out of there.  2 more days and counting....
Andrea
Logged
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #25 on: April 30, 2009, 07:15:00 am »


Kathy..
 Uh yeah...my suitcase is not even packed yet. But my carryon is. Go Figuire. hehe.. I told my mom that u are prepared in the off chance if it is going to rain. Oh darn it I have to remind her to get some cookies for Sun. I will call her on Thurs nite. I worked my last day today. Gee, the next time I work will be May 15. LOL! I need it. I just found out that when I come back they will take out the deli registers. So I will be up front for now on. I am sooo glad I am out of there.  2 more days and counting....
Andrea
Hey Andrea,
I just watched the weather on TV ..So far the rain coming it's worse will be it's heaviest on Saturday night into Sunday UGH!!!
Where did the 100* weather go to???
Should I cancel till next weekend?
LMK and I'll fax the businesses
Kathy
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Malfina
Seeker of Support
*
Offline Offline

Posts: 150


« Reply #26 on: April 30, 2009, 07:58:15 pm »


Kathy..
 I just talked to my mom. She told me that it supposed to clear by sun. It supposed to rain on fri and some rain on sat.  Don't cancel. 
I am halfway packed.... 1 more day..
Andrea
Logged
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #27 on: April 30, 2009, 10:46:07 pm »


Kathy..
 I just talked to my mom. She told me that it supposed to clear by sun. It supposed to rain on fri and some rain on sat.  Don't cancel. 
I am halfway packed.... 1 more day..
Andrea

I called the office today. yesterday was the last day to reserve a "shelter" THe roof top seating areas.THe only one left to reserve was $350 for 12hours. No way Jose! So I stressed who we were and a Dr was coming, we are disabled, blah blah blah and she said there is a new area near a water fountain I think she said it's called "the Camanche" and we can share it for free with others on a first come first serve basis but I have to be there by 7 am.
So if anyone wants to come earlier feel free too.
I am going Saturday to WalMarts deli and buy some cold cut giant sub sandwiches in the event it rains and I can't cook the 50 hot dogs.

**NOTE to get to this area take Highway 99 to the Armstrong Rd exit. This new canopy area is near a water fountain and this place is huge. She said is was built since last May when we were there last.
We will be in a blue Dodge pickup with disabled parking plates.
Can't wait to meet you!!!!
« Last Edit: April 30, 2009, 10:49:38 pm by Adminஐﻬ » Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Malfina
Seeker of Support
*
Offline Offline

Posts: 150


« Reply #28 on: May 01, 2009, 11:41:32 pm »


Kathy...
 Thanks for the info. Right now too late to call my mom on the new info. I will tell her when I see her when my plane lands. Ok..Blue Pickup with handicap placard. Thanks for reminding me. I have to get mine out of my car. I only use mine when I am dead tired. Hehe.. I will be in a blue Yankees cap...wearing jeans and don't know what kind of shirt. My mom is bringing something.  Her car is a beige Toyota... Can't wait to meet u also. Finally...LOL!!
See u on Sunday!!!!    wave
Andrea
Logged
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #29 on: May 02, 2009, 05:54:31 am »


Kathy...
 Thanks for the info. Right now too late to call my mom on the new info. I will tell her when I see her when my plane lands. Ok..Blue Pickup with handicap placard. Thanks for reminding me. I have to get mine out of my car. I only use mine when I am dead tired. Hehe.. I will be in a blue Yankees cap...wearing jeans and don't know what kind of shirt. My mom is bringing something.  Her car is a beige Toyota... Can't wait to meet u also. Finally...LOL!!
See u on Sunday!!!!    wave
Andrea
It's almost 5 am.
Going shopping at Wally World for some fresh sub sandwiches in event people don't like BBQ hotdogs..
Need to get beans, condiments, chips, salsa, more drinks (we have cases of water to bring)
See you tomorrow morning! Or whenever you & Mom get there!
WHOO HOO !! The party is on!
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Pages: 1 2 »   Go Up
  Print  
 
Jump to:  


© Page Contents, Layout, Graphics and Design All Copyrighted by Credited Artists and are Not Public Domain.



LupusMCTD Founder & Patient
Former Domestic Violence SURVIVOR
Kathy A. Patterson

Author of the Upcoming Memoir Book:
"Fighting From The Inside Out"..
A lupus patient fights the beast within her immune system and the beast at home....

e-Booklet filled with photos and videos of what abuse was, signs to look for,
where to turn to for help, and much more to help others like me...


For more information
Call the National Domestic Violence Hotline at 1−800−799−SAFE(7233)



"The Meaning of the Words in the Second Amendment .... "That the people have a right to freedom of speech, and of writing, and publishing their sentiments;"

PRIVACY NOTICE: Warning--any person and/or institution and/or Agent and/or Agency of any governmental structure including but not limited to the United States Federal Government also using or monitoring/using this website or any of its associated websites, you do NOT have my permission to utilize any of my profile information nor any of the content contained herein including, but not limited to my photos, and/ or the comments made about my photo's or any other "picture" art posted on my profile. You are hereby notified that you are strictly prohibited from disclosing, copying, distributing, disseminating, or taking any other action against me with regard to this profile and the contents herein. The foregoing prohibitions also apply to your employee(s), agent(s), student(s) or any personnel under your direction or control. The contents of this profile are private and legally privileged and confidential information, and the violation of my personal privacy is punishable by law
Photobucket
© 2008 LupusMCTD Foundation of America - All Rights Reserved
Est.November 11, 2005
"We Understand What You Are Going Through"™
Powered by EzPortal

Powered by MySQL Powered by PHP Powered by SMF 1.1.21 | SMF © 2015, Simple Machines
Twitter Mod created by 2by2host.com - a web hosting company