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« Reply #30 on: May 02, 2009, 10:26:41 pm » |
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Rain or shine, the Northern California group will still meet at Micke Grove Park Sunday morning. I have to be there by 7 am to get first come first serve a shelter covered area. Anyone who's attending reading this, FEEL FREE TO COME EARLY & HELP ME SET UP! Any help setting up in the morning will be appreciated! Thank you! Kathy
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 I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside. www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
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3sisters
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« Reply #31 on: May 02, 2009, 11:06:50 pm » |
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Kathy, Sorry we won't be there very early, but we will be ready to assist you as soon as we arrive! Looking forward to tomorrow and try to get some rest!
WOO- HOO! See you in the morning! 
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Living with NP-SLE/ MCTD and MS. Powered by the Indigenous 7th Sense and lots of meds... Living with an invisible illness sucks. But living with an UN-diagnosed and UN-treated illness REALLY sucks. "Where HOPE is a Work in Progress™"
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Adminஐﻬ
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« Reply #32 on: May 03, 2009, 07:09:46 pm » |
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« Last Edit: May 03, 2009, 08:15:55 pm by Adminஐﻬ »
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 I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside. www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
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Holly P.
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« Reply #34 on: May 03, 2009, 08:23:52 pm » |
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LMAO I have no idea why my pic is SO BIG I had to re-register because I couldn't remember my password or log in name from before. I never posted a whole lot but now I am back down to one.
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Adminஐﻬ
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« Reply #36 on: May 03, 2009, 08:52:05 pm » |
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LMAO I have no idea why my pic is SO BIG I had to re-register because I couldn't remember my password or log in name from before. I never posted a whole lot but now I am back down to one. Holly in Photobucket you can resize it to fit as an Avatar. If you don't have an account, send me the pic via email and I'll do it for you.
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 I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside. www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
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Adminஐﻬ
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« Reply #37 on: May 03, 2009, 08:57:09 pm » |
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WOO-HOO!
Kathy we all had a great time Everything was perfect! I enjoyed all the clouds as we don't have them too much during the summer months. Now I have the overwhelming sleepies....
I really enjoyed meeting and hanging with Andrea and her Mom, as well as Miss Sandra and Bryan from DRAIL, she was very informative and professional and quite the networker! The key chain rocks and I will PM Ali about it! LMAO
I enjoyed singing the Bad Boyz song with Andrea and Dave's suggestion of the UMP-LA from Willy Wonker!
Dominique and her friend had fun running around together. She also enjoyed the neigboring kids birthday party (Not too shy there as Dave pointed out). She had a great time seeing you, as she adores you guys. Her friend isn't too shy either, huh?! She's a pleasure to have and is a well mannered kiddo. Kuddos to her parents 
Holly, the 3 stickers that were on my hat, were each for: YOU! TESA! and CLARE! WOO-HOO! You were all with us in Spirit!
Thanks for making this great day possible Kathy and I hope that you get some rest. I'm ready for August or September! xoxoxo Tyler, you missed some great food  Kimmy, I wished you could of came earlier to spend more time with us. Thank you for helping us carry stuff back to the truck This morning we could of used helped with all those booklets.I couldn't tell you how many trips we made to retrieve those things to bring them to the picnic area. I won't miss dragging those around  Kathy
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 I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside. www.LupusMCTD.com Represents: 1) We are patients helping researchers build a future for the lives of others... 2) Where HOPE is a WORK In Progress 3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
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Malfina
Seeker of Support
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Posts: 150
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« Reply #39 on: May 03, 2009, 11:24:57 pm » |
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Kathy.. It was so great to finally to meet you. Yeah the weather sucked big time. That's fine. A little rain does not hurt. Sorry that we could not be there sooner. Uh..it was me. I did not get out of bed until almost 930. Blame the jet lag. Right now I am wide awake Go fiqure. I had a fun time. It was great meeting Kim. And your husband Dave. The pics came out great. Too bad that I wont be out for Sept/Oct. If I had 3 weeks of vacation. Darn...  !! I am planning on flying out again next year. The family reunion. Gee, I have never done that before. Fly out to Cali for 3 years in a row. Uh...I should concertrate on my list. (I made a list of places that I have never been yet.) Hope u are nice and warm in your bed and sleeping. I went to Target after and bought 3 pc game. Hehehe....So...might stay up late tonite.  !! Hugs.. Andrea
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