Welcome To www.LupusMCTD.com
March 28, 2024, 03:56:19 pm *
Welcome, Guest. Please login or register.

Login with username, password and session length
 
   Home   Forum Help Search Calendar Login Register  
Pages: 1   Go Down
  Print  
Author Topic: Shortage of Lupus Patients Challenges Growing Number of Clinical Studies  (Read 2931 times)
0 Members and 1 Guest are viewing this topic.
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« on: September 02, 2009, 01:40:11 pm »

Shortage of Lupus Patients Challenges Growing Number of Clinical Studies
Tue Sep 1, 2009 
Lupus Foundation of America Seeks to Educate Patients About Participation in
Clinical Trials

It has been more than 50 years since the U.S. Food and Drug Administration (FDA)
last approved a new medicine specifically for lupus - when Dwight D. Eisenhower
was president. Existing treatments have been "borrowed" from other disorders and
the risk/benefit ratio of these treatments is far from optimal. However, hope is
on the horizon. Data from a recent study of an experimental treatment showed
promising results, and approximately two dozen potential new lupus therapies are
in various stages of development and evaluation.

Unfortunately, biotechnology and pharmaceutical companies are finding it
increasingly difficult to recruit a sufficient number of eligible people with
lupus at experienced clinical trial centers to participate in their studies.
This shortage of well-informed patients threatens to slow the momentum which had
been building for lupus drug development.

To address this shortage of participants, the Lupus Foundation of America (LFA)
will conduct a live chat on its website, www.lupus.org, on Wednesday, September
9 at 3:00 p.m. Eastern time, to answer questions from individuals who may be
interested in lupus clinical trials. Kenneth A. Getz, a senior research fellow
at the Tufts Center for the Study of Drug Development, will be the featured
guest. Use this link to login to the live chat or to submit a question in
advance.

Getz is the founder and Board Chair of the Center for Information and Study on
Clinical Research Participation (CISCRP), and author of a nationally recognized
book for patients and their advocates entitled, "Informed Consent: A Guide to
the Risks and Benefits of Volunteering for Clinical Trials."

The LFA created the Center for Clinical Trials Education (CCTE)
(www.lupus.org/clinicaltrials) to educate people with lupus about clinical trial
participation, and to provide information they should know before making a
decision whether to enroll in a study.

Approximately 1.5 million Americans have a form of lupus, a chronic autoimmune
disease which develops when the immune system is unbalanced, causing it to
become destructive to any organ or tissue in the body.

The LFA is the nation`s foremost national nonprofit voluntary health
organization dedicated to finding the causes of and cure for lupus and to
providing support, services and hope to all people affected by lupus.


SOURCE:Rueters

Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Pages: 1   Go Up
  Print  
 
Jump to:  


© Page Contents, Layout, Graphics and Design All Copyrighted by Credited Artists and are Not Public Domain.



LupusMCTD Founder & Patient
Former Domestic Violence SURVIVOR
Kathy A. Patterson

Author of the Upcoming Memoir Book:
"Fighting From The Inside Out"..
A lupus patient fights the beast within her immune system and the beast at home....

e-Booklet filled with photos and videos of what abuse was, signs to look for,
where to turn to for help, and much more to help others like me...


For more information
Call the National Domestic Violence Hotline at 1−800−799−SAFE(7233)



"The Meaning of the Words in the Second Amendment .... "That the people have a right to freedom of speech, and of writing, and publishing their sentiments;"

PRIVACY NOTICE: Warning--any person and/or institution and/or Agent and/or Agency of any governmental structure including but not limited to the United States Federal Government also using or monitoring/using this website or any of its associated websites, you do NOT have my permission to utilize any of my profile information nor any of the content contained herein including, but not limited to my photos, and/ or the comments made about my photo's or any other "picture" art posted on my profile. You are hereby notified that you are strictly prohibited from disclosing, copying, distributing, disseminating, or taking any other action against me with regard to this profile and the contents herein. The foregoing prohibitions also apply to your employee(s), agent(s), student(s) or any personnel under your direction or control. The contents of this profile are private and legally privileged and confidential information, and the violation of my personal privacy is punishable by law
Photobucket
© 2008 LupusMCTD Foundation of America - All Rights Reserved
Est.November 11, 2005
"We Understand What You Are Going Through"™
Powered by EzPortal

Powered by MySQL Powered by PHP Powered by SMF 1.1.21 | SMF © 2015, Simple Machines
Twitter Mod created by 2by2host.com - a web hosting company