Well hello! I don't know whether to start a new topic, lol or what, but I thought I would jump in and say hi to everyone. It's been a LONGGGG time since I have been back on the board and I'm still not great at finding my way around, so if I didn't answer anyone or offended anyone by my silence, I hope you will be patient and forgiving as I don't know/remember stuff very well!
Just wanted to say that I've been doing super good all summer. Most of you that know me know that I've been on oxygen for abt five years now I think. But, I haven't used my oxygen in six months or so. I still need it here and there but not 24/7... I'm so happy and hope it continues like this. I know I said on my last post that the Plaquenil has been like a miracle drug for me and its been great. I also found out I have had Fibro (no news to me, but to finally get a dr. to tell me that was nice.) So I've been on a med called Savella for the Fibro... and it has helped my pain levels tremendously. I tried Lyrica and wow, that helped really well and pretty fast, but after 30 days I had chest pains every day and found out it was from the Lyrica... Bummer. But the Savella is working great, so it's all good
I hardly had pain all summer, but just two weeks ago the stiffness, pain, fatigue, etc. all set in. Sometimes it is soooo hard to feel good for a few hours, a few days, weeks even months and then BAM! Somebody pulls the rug out from under you, lol. It's a shock, like, what did I do wrong? It just happens. But, I still feel I'm more active now than I have been in the last ten years. And the numbness of my left arm or a leg! It just blindsides me. *sigh* I just haven't had those type symptoms in awhile! Well, I love you all and I just wanted to say hi. Kathy, thanks for sending me this thread so I could find the board again! I promise I won't wait so long to post this next time.