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Author Topic: What's up! How's everyone doing?  (Read 6164 times)
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heireeNoind
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« on: April 09, 2010, 10:05:27 pm »

How's everyone doing? I love it here! I hope to learn a great deal maybe make some new friends! smiley
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« Reply #1 on: April 12, 2010, 01:36:20 pm »

How's everyone doing? I love it here! I hope to learn a great deal maybe make some new friends! smiley

Hello & Welcome!
We have a very active site on www.LupusMCTD.ning.com
This is our original board and has a lot of isses with tech problems.
So we hang out over at the ning site where it's problem free!
Plus we get to upload videos, photos, etc on it!

Welcome to LupusMCTD!
Kathy
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
hayley3
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« Reply #2 on: October 21, 2010, 07:08:18 pm »

How do you get to post on the ning site?  It says you need an invitation.

Cheryl
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« Reply #3 on: October 23, 2010, 08:16:30 am »

the Ning site closed a few months ago when they started charging to use that server. I pay already for this site, so this is the only LupusMCTD site open now... and on Facebook
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I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
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LupusMCTD Founder & Patient
Former Domestic Violence SURVIVOR
Kathy A. Patterson

Author of the Upcoming Memoir Book:
"Fighting From The Inside Out"..
A lupus patient fights the beast within her immune system and the beast at home....

e-Booklet filled with photos and videos of what abuse was, signs to look for,
where to turn to for help, and much more to help others like me...


For more information
Call the National Domestic Violence Hotline at 1−800−799−SAFE(7233)



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