Welcome To www.LupusMCTD.com
March 28, 2024, 06:31:16 pm *
Welcome, Guest. Please login or register.

Login with username, password and session length
 
   Home   Forum Help Search Calendar Login Register  
Pages: 1   Go Down
  Print  
Author Topic: Hello From Holly!  (Read 13547 times)
0 Members and 1 Guest are viewing this topic.
Songofhearts
Full Seeker of Support
***
Offline Offline

Gender: Female
Posts: 594


Fear is a lack of faith...


« on: July 21, 2010, 11:22:19 pm »

 bflydance  Well, I found my way back here finally!  smitten

It looks like you've been on a ning site as many of the posts here date back to 2009 and there's not a lot for 2010.  So I hope I am right to post here!

I have sure missed everybody and I did have a pretty awful year.  BUT, the good news is that I saw several new drs. and I was put on Plaquenil abt. 2 months ago.  The Rhuemy told me that it would take abt. 6 wks before I would feel a difference... IF I was going to feel a difference.  Well I do.  I feel a whoppingly HUGE difference.

I am able to move more freely and with less pain.  I feel more normal than I have in YEARS.  I am also using a product from Isagenix (well two products) and I also am finally back on my thyroid medication.  All these things are helping me so much.  I also haven't used my oxygen in a month!  WOO HOO!

I just wanted to touch base and say hi to everyone.  I would like to support you all with my friendship, my experience and my own desire to learn from all of you...  Kathy, if I am in the wrong spot, please point me in the right direction.  I would like to post to my thread, but I am also wondering if I should just statrt a new one!  lol

So happy to be here, to meet new friends and say "thank you" to old ones.

Lots of love,
Holly smiley       gthrng
Logged

Holly (the original one)

"I think God puts me on my back so that I can look up more often..."
Adminஐﻬ
"Pay It Forward" ஐﻬ
Site Owner
******
Offline Offline

Gender: Female
Posts: 10407


LupusMCTD Founder ஐﻬ


WWW
« Reply #1 on: July 22, 2010, 04:27:45 pm »

 CandleSmilie ((HOLLY)))
You posted correctly!! Glad to see you back .. yes that Ning site was closing due to them wanting money, no more freebie.
But between here & on FB we have plenty of members hanging wit us these days..
Go to my FB page and start adding my friends over 400 of them http://www.facebook.com/?sk=messages&tid=1512585567823#!/LupusMCTDFoundation

Glad to see you here Gosh you were missed!
Logged


I look normal, as I have an "Invisible Illness". You can not catch it, you can not see it. It's called Lupus.My body is attacking itself on the inside.
www.LupusMCTD.com Represents:
1) We are patients helping researchers build a future for the lives of others...
2) Where HOPE is a WORK In Progress
3) Pay It Forward~Giving Back To The Future Lupus/MCTD Patients
Songofhearts
Full Seeker of Support
***
Offline Offline

Gender: Female
Posts: 594


Fear is a lack of faith...


« Reply #2 on: September 14, 2011, 12:35:51 am »

 gthrng
Well hello!  I don't know whether to start a new topic, lol or what, but I thought I would jump in and say hi to everyone.  It's been a LONGGGG time since I have been back on the board and I'm still not great at finding my way around, so if I didn't answer anyone or offended anyone by my silence, I hope you will be patient and forgiving as I don't know/remember stuff very well! 

Just wanted to say that I've been doing super good all summer.  Most of you that know me know that I've been on oxygen for abt five years now I think.  But, I haven't used my oxygen in six months or so.  I still need it here and there but not 24/7... I'm so happy and hope it continues like this.  I know I said on my last post that the Plaquenil has been like a miracle drug for me and its been great.  I also found out I have had Fibro (no news to me, but to finally get a dr. to tell me that was nice.)  So I've been on a med called Savella for the Fibro... and it has helped my pain levels tremendously.  I tried Lyrica and wow, that helped really well and pretty fast, but after 30 days I had chest pains every day and found out it was from the Lyrica... Bummer.  But the Savella is working great, so it's all good

 I hardly had pain all summer, but just two weeks ago the stiffness, pain, fatigue, etc. all set in.  Sometimes it is soooo hard to feel good for a few hours, a few days, weeks even months and then BAM!  Somebody pulls the rug out from under you, lol.  It's a shock, like, what did I do wrong?  It just happens.  But, I still feel I'm more active now than I have been in the last ten years.  And the numbness of my left arm or a leg!  It just blindsides me.  *sigh*  I just haven't had those type symptoms in awhile!  Well, I love you all and I just wanted to say hi.  Kathy, thanks for sending me this thread so I could find the board again!  I promise I won't wait so long to post this next time.   rolleyes

Love Holly smiley
Logged

Holly (the original one)

"I think God puts me on my back so that I can look up more often..."
fleamailman
Hero Supporter
****
Offline Offline

Posts: 1005



« Reply #3 on: September 14, 2011, 02:49:14 am »

("...allow me to hug you then..." went the goblin, showing that he had read the post, adding "...think of me as one of your fans where I think of you as one of the heros...")
Logged

"...ah, signs of life..." said the goblin feeling that if that there was one thing the humans did well, it was "greed" but little did they know that they were dealing with a black-belt "last post" poster, "...post at your peril humans..." he softly warned them without him even reaching across to his coffee, he was fast
Songofhearts
Full Seeker of Support
***
Offline Offline

Gender: Female
Posts: 594


Fear is a lack of faith...


« Reply #4 on: September 14, 2011, 04:10:15 pm »

Hello Goblin lover!  You need to write a wonderful novel as your writing skills are intense and very good!
 rockingbaby  I am happy to report that in this past year I have actually been able to babysit my granddaughter!  She is one.  I was sooo scared, but we get along famously since I understand babies and animals pretty well!  Again, babysitting has been out of the question for me for soooo many years and so I feel it to be a wonderful blessing to be able to do so. 

For some odd reason, my seizure activity has increased again though...  I had nine seizures one night (three sets of three small ones or I guess 3 bigger ones?  lol)  Anyway, the valium has helped keep other seizures at bay, but I don't like it that my brain has been feeling a little strange again.  Oh, well!  Whew!  I'm already tired... so that's all for today.  OOOOhhh did I tell you all that I have new pretty teeth now?  Yeah the Sjogrens caused me to have to have all my teeth pulled last October.  (No holiday treats for me last year!)  I had NO TEETH for seven months!  Sooo embarrassing!  But now I have my pretty dentures...  And no pain when I eat cold foods.  Anyone else have teeth decay due to Sjogrens (the drying of your fluids) or from medications that you have to take?  Would love to hear from you or your experiences.  I bet a LOT of us have bad teeth!
 chkbrd  Brush them everyday and floss, otherwise you will turn into a Granny Sycamore (that's what my hubby calls me)!!!  lol  Have a wonderful day!
Love Holly smiley
Logged

Holly (the original one)

"I think God puts me on my back so that I can look up more often..."
fleamailman
Hero Supporter
****
Offline Offline

Posts: 1005



« Reply #5 on: September 20, 2011, 11:13:00 pm »

("...I wish there was a kudos button on the board, or at least some way to thank you for your post then..." replied the goblin who had only return now to read this, saying "...even if I turn up occasionally here, a creature of habit I am, so I'm subscribed to this thread now and will read whatever you wish to tell me, also I believe kathy and the others are mostly on facebook these days so you'll catch them there though I suspect that they pass by here too at times...", and with that the goblin wished well and would be here now)
Logged

"...ah, signs of life..." said the goblin feeling that if that there was one thing the humans did well, it was "greed" but little did they know that they were dealing with a black-belt "last post" poster, "...post at your peril humans..." he softly warned them without him even reaching across to his coffee, he was fast
Pages: 1   Go Up
  Print  
 
Jump to:  


© Page Contents, Layout, Graphics and Design All Copyrighted by Credited Artists and are Not Public Domain.



LupusMCTD Founder & Patient
Former Domestic Violence SURVIVOR
Kathy A. Patterson

Author of the Upcoming Memoir Book:
"Fighting From The Inside Out"..
A lupus patient fights the beast within her immune system and the beast at home....

e-Booklet filled with photos and videos of what abuse was, signs to look for,
where to turn to for help, and much more to help others like me...


For more information
Call the National Domestic Violence Hotline at 1−800−799−SAFE(7233)



"The Meaning of the Words in the Second Amendment .... "That the people have a right to freedom of speech, and of writing, and publishing their sentiments;"

PRIVACY NOTICE: Warning--any person and/or institution and/or Agent and/or Agency of any governmental structure including but not limited to the United States Federal Government also using or monitoring/using this website or any of its associated websites, you do NOT have my permission to utilize any of my profile information nor any of the content contained herein including, but not limited to my photos, and/ or the comments made about my photo's or any other "picture" art posted on my profile. You are hereby notified that you are strictly prohibited from disclosing, copying, distributing, disseminating, or taking any other action against me with regard to this profile and the contents herein. The foregoing prohibitions also apply to your employee(s), agent(s), student(s) or any personnel under your direction or control. The contents of this profile are private and legally privileged and confidential information, and the violation of my personal privacy is punishable by law
Photobucket
© 2008 LupusMCTD Foundation of America - All Rights Reserved
Est.November 11, 2005
"We Understand What You Are Going Through"™
Powered by EzPortal

Powered by MySQL Powered by PHP Powered by SMF 1.1.21 | SMF © 2015, Simple Machines
Twitter Mod created by 2by2host.com - a web hosting company