Chatty Kathy

[♥ Butterfly Goddess ♥]

Momma~
I put the anger to good use earlier... lol.  I cleared some of the trash that was in my room.  Really, this outburst was just round two for today.  I had my first round this morning when I got mad at my mom for thinking I'd really fail to return money to her.  I should back up a bit and let you know that we got a check from Sovereign Bank yesterday- a refund made out to both of us- so I agreed that the money should go to my mom.  Didn't count on the bank making me deposit the entire check however.  Even though my mom warned me of this factor, so I brought my savings account information for the bank I have my car loan at.  I got home, told my mother that she was right, that I had to deposit the entire check.  She got upset.  I got more upset, because in front of my sister she had the nerve to make it sound like I wouldn't give her the money at all.  I ended up throwing the savings account register at her.  I don't know where it ended up at this point.  So, needless to say... I was seriously stewing already when stuff went down over the dog messing in my room.

Hope that your day went well- aside from that early wake up call!
luvs ya bunches~
ME

[Adminஐﻬ]

.  I should back up a bit and let you know that we got a check from Sovereign Bank yesterday- a refund made out to both of us- so I agreed that the money should go to my mom.  Didn't count on the bank making me deposit the entire check however.  Even though my mom warned me of this factor, so I brought my savings account information for the bank I have my car loan at.  I got home, told my mother that she was right, that I had to deposit the entire check.  She got upset.  I got more upset, because in front of my sister she had the nerve to make it sound like I wouldn't give her the money at all.  I ended up throwing the savings account register at her.  I don't know where it ended up at this point

Sweetheart,
If it were my daughter, she would of told me "it's my car and my old car loan so it's my money".
Your Mother is is fortunate to have a daughter like you.
I just wish she would wake up and smell the coffee on what a sweatheart you are.
I wish you would of moved to Crystals (Krystal?)
No matter what you do, it's not or never going to please your Mom.
JMHO
Love you babygirl,
Me

[Adminஐﻬ]

Here is today's info on my Endocterine <sp> visit. THey were worried about my heart rate being that low (55)
It went over the 45 minute visit due to her questioning about my artery stents in my leg. THen some symptoms I'm telling her, she honestly feels that this blockage is not in my leg but in my neck. She listened with a stethascope and couldn't hardly hear my heart beating. She wants the Cardio appt to be done with a stress test and a possible Angiogram.
I told her I have on Oct. 17the a sigmental study of my legs and arms to look for blockages, she said continue with that study appointment  but I feel your blockage is right here and touched on the left side of my neck.

It appears I gained weighed but I actually had tennis shoes and jeans on, no shorts or sandals to kick off to be weighed and it appear I weigh less.
I can't see well to read on this black screen but I can't tell if I wrote I am to start Lipitor

She is putting in her notes about the Procardia could be the reason behind my heart doing the "start, no beat, then a double beat/kick and then proceed to normal ryhtym".<sp>

After she was done, she had me talk to a dietician. She was very nice and at the end gave me a booklet about this heart healthy meeting on Tuesday in the month of October.
Well, it interfears with "somebodys" work schedule. So I can't go & learn more about eating healthier, cooking differently, etc.
That's a whole nother story there..  But here's my medical visit info She was a very sweet & kind young girl, from Pakistan possibly?:.


Next Visit 
General InformationWhat:Office Visit with Nirali Patel, MD
When:Monday, Sep 22 2008 1:30 PM
Where:Main Endocrinology
Phone:209-550-xxxx
VitalsBlood Pressure:102/70
Pulse Rate:55
Weight:110 lb (49.896 kg)
Patient InstructionsHAVE FASTING BLOOD TEST FEW DAYS BEFORE THE FOLLOW UP

WILL REFER TO CARDIOLOGY
Follow-Up InstructionsReturn in about 2 months (around 11/22/2008).
Medications Prescribed During This VisitName Start Date Date Stopped
LIPITOR 20 MG PO TABS 09/22/2008 
OrdersName Type
CAROTID DOPPLER BILATERAL Procedures
Do No Later ThanName Do No Sooner Than  Type
VAP TM Cholesterol  10/22/2008 LAB REFERENCE LABORATORY
AST  10/22/2008 LAB CHEMISTRY
ALT  10/22/2008 LAB CHEMISTRY
CPK  10/22/2008 LAB CHEMISTRY
Homocysteine  10/22/2008 LAB CHEMISTRY

[3sisters]

VAP TM Cholesterol  10/22/2008 LAB REFERENCE LABORATORY
AST  10/22/2008 LAB CHEMISTRY
ALT  10/22/2008 LAB CHEMISTRY
CPK  10/22/2008 LAB CHEMISTRY
Homocysteine  10/22/2008 LAB CHEMISTRY

Hi Kathy~  I am glad that this doc is so thorough and easy going with you! I know that it is a lot of information to digest, but your endocrinologist sounds really awesome.  A quick heads up on the highlighted tests.

 AST and ALT = liver function panels
CPK = special muscle enzyme test, which  can detect inflammation and damage ( I am REALLY glad that she is running this on you!)  When I was dx'd with polymyositis in the Spring of  '06, this was elevated in me, and with your muscle LOSS I think that it is awesome that she is running this on you.
Homocysteine= a chemical  found in the blood, that may damage artery walls and promote formation of blood clots, which can lead to stroke or heart attack.  ->If this is elevated, there are vitimans that you can take to lower this, that really work

I read an article somewhere, from an immunologist / rheumatologist  that they believed that high cholesterol (CAD) was an autoimmune disease. I will find that link and send it to you.

This doctor sounds very caring and confident. I'm glad that you were directed to her. She will go to bat for you, Kathy!  And just remember that we are all here for you!

Hugs,
Kimmy

[Adminஐﻬ]

VAP TM Cholesterol  10/22/2008 LAB REFERENCE LABORATORY
AST  10/22/2008 LAB CHEMISTRY
ALT  10/22/2008 LAB CHEMISTRY
CPK  10/22/2008 LAB CHEMISTRY
Homocysteine  10/22/2008 LAB CHEMISTRY

Kim
thank you for this info!
I don't know why I put down 55 as my pulse  being that number.
I have the paperwork right here it says 48 beats per min. B/p was 102/70 -low for me but I'm happy it was like that.
Kim 3 years ago when my sister Debby was on life support & they disconnected her her pulse was higer than that but I stayed with her till it dropped down into the 20's because I knew it wouldn't be long, plus I was talking to the nure as she was disconnecting and dumping her catherter bag.
Why it was loww I don't know.
The night before I went to bed I did take one of Dave's valiums to relax my back, could that make your heart beating the next down slow down that low??

I go to the Ortho today on my ankle, but I'm bringing up my MRI from last week on my neck and my lower back see if he will treat me for those too. I looked him up online he's smiling in his pic young white guy... Hope he's nice.
Honestly so far the last 2 specialist were women and I am getting more done with the women! They listen to, they don't cut you off when you are trying to remember or wanting to say something. I like that respect

Talk tonight hopefully Buddy 2 Buddy style I'd say about 7:30 or so will be fine.
Now I have phone #2 plugged in to stay charged in the other bedroom, I wouldn't put it past him to pick it up and listen....
I've been there before and ended up losing friends (they were my neighbor friends) but still it was a friend for me to talk to.
That was the 1980 before I grew wayblows

[3sisters]

I'll be at that meeting tonight.  I'll be back home by 9:30,  and will call you when I get in. I  am looking forward to what the cute Ortho says    .   (((KATHY)))


PS: Hope Bracelet mailed to Clare at 3 pm our time today   

Love, Kimmy

[Adminஐﻬ]

I'll be at that meeting tonight.  I'll be back home by 9:30,  and will call you when I get in. I  am looking forward to what the cute Ortho says   .   (((KATHY)))


PS: Hope Bracelet mailed to Clare at 3 pm our time today  

Love, Kimmy

He and Mikie left at 6:15 pm. He may be getting home by 10 or so. Depends how fast they get in and out.

I was in & out of the Ortho within 5 minutes with a lace up ankle support and a Physical THerapy form when I left. They will call me and set up PT appts.

You could tell that Mr A just loved that idea, the thought of having to drive Miss Daisy somewhere which would interfear with him resting/sleeping in the afternoon so he can go help his brother, not his wife but his brother...Errrr

I told him if I had a car I'd drive myself for my own pysical therapy lessons. He reminded me how I gave away my old car to the cancer society. That's right I did.... it was over 18 yrs old and he had just took our "joint" car and traded it in on him a new truck in his name only.
What better way to break in the mileage is to have to run extra miles helping the wife...
He should of never bought a new truck behind my back. I'm glad I donated my clunker to Cancer Society, made me feel good to give.And it's still giving........more miles on his new truck anyway.

Guys if you are reading this, a woman always is right and will have the last say. Sick or not, right is right, wrong is wrong.

And to this day it's still giving................he he he extra miles on his truck
I love being a woman, hear me roar! I am WOMAN!!!!


.

[Adminஐﻬ]

I thought I would put my recent health notes here as Dave does not know  my screen names and passwords to my medical site. I don't want to retype them or give him my passwords till I'm long gone lol
He knows where my green binder is filled with notes, clumps of hair, Dr appt. cards, etc. is.
Kim, if Dave needs any info on me with dates & drs, it will all be kept here in my thread Chatty Kathy

Hypertension (High Blood Pressure) 08/28/2002
Asthma 08/28/2002
Seizures 08/28/2002
Tobacco Use 08/28/2002
Peripheral Vascular Disease 12/23/2002
Allergies   
Hypertension (High Blood Pressure)   
Xanthelasma   
Peripheral Neuropathy   
Torsion Dystonia Oth Acquired   
Bone Or Cartilage Problem   
Sprain Ankle Nos   
Oral Ulcers   
High Cholesterol 09/22/2008
Joint Symptom Nec-ankle 09/23/2008


My personal Health Notes~
Richard Holihan- dx ANA low positive (October 2002
recieved phone call from Stephanie who said "you have
Lupus, but it doesn't mean your'e going to die
from it" I was to discuss this low positive with him
on my next visit but due to the emergency need for
Angioplasty and tired of him not listening to me
on my ailments, I changed Doctors after 30+ years .

Tom Kraft- dx Grade 1 slip @ L5-S1 and C4-5-6

Mark Madson-dx L5/L4 starting to press cervical
bilaterial herniated disks.Neck tractions in PT
did help back then.Wish I could get help like that
now.

Surgeons Kevin Whang & Tim Davis said on day of Angioplasty
they were worried about rerouting my arteries
because of the Myathais Gravis (weakness of my
legs)

Eric Hassid Nuerologist (UC Davis Sutter)
Dystonia-
2004

MRI on Oct.2002 showed I have Spina Bifida Occult

Have had vertigo episodes, and seizures since
1975.

Photos I have taken to show Drs.from July 2004
show the knot under my left arm, swelling of my
legs/feet, glands under my tongue swollen. Bags of
my hair that fell out in clumps are still bagged
and dated.

I was taking Darvocet 100/650mg 1-2 PO Q4-6H
PRN along with Vioxx 25 mg 1 PO QD.(RECALLED, I
hadto quit Vioxx for my pain).

In 2007 Dr. Hornberger said I should stop taking
"SOMA" for the muscle contractions in my neck and
lower back muscles. I did.
Now I'm basically down to nothing for pain
management except for currently I am ONLY taking
Darvocet 100/APAP 500 TABS 1 every 4 hours as
needed.

Today August 20th 2008 Dr. David said stop taking
my Darvocets and go back to OTC Tyelnol up to
4,000mg per day.(because Darvocets are addicting) Yet
they control my pain?

I don't feel comfortable having no pain management
with all my health issues, considering it's been a
few good years since I had an MRI to see the
changein the neck and back.And I'm being told to switch
to OTC Tylenol?

My med Provental was denied refills after many years of it working effectivly. Also Dr. David wanted me to start in on some new inhaler that had a steroid in it. Avatar? I refused to buy the prescription. I have one years worth of my medicine for my little breathing machine.

~NOTE I'll keep adding all my test results here. I'll copy & paste them from our new online health care site.
It will help Dave in the event of a big boo-boo and he needs my records.
Mikie has a screen name on here *David* and can sign in and print this out.

[Adminஐﻬ]

Well I went, laid on the guerney, no biggie just like my blood flow test on my legs I had done on Friday, except this was to concentrate on my ateries in my neck.
Dave sat at the foot of my bed , since I couldn't see the machine I'm relying on Dave to be my eyes.

He is what he saw in his words:
She first started doing the doppler on the right side of Kathy's neck it looked liked burnt or stretched skin, but it was gray in color. The deeper the lady went with the doppler more things appeared like bumps.
Then when she reached inside the arteries it showed up the plaque build up, one in the shape of an hour glass, she was useing one color *blue* and all the sudden the color *red* showed on the opposite site, when the two colors met she took a still picture of it. And she continued down Kathy's neck. THe rest of the color was all red.She took photos of each section, then when she was done, she said " I lost the pictures I have to do it all over again". Which she did.

On the left side I saw a little bit of blue show up but mostly red. The colors of the lines overlapped one on top of the other. Like laying one finger on top of the other finger."
If anyone knows anything about neck arteries and/or this test, I'd love to hear from you.
Kathy

[Adminஐﻬ]

Yesterdays lab work October 23, 2008

Component Results
Component            Your Value    Standard Range    Flag
Collection Type    Clean Catch     -       
Urine Color    Yellow     -       
Urine Appearance    Hazy     -       
Urine Specific Gravity    1.019    1.001-1.035      
Urine pH    5.5    5.0-7.0      
Urine Leukocyte Esterase    2+    Neg-       A
Urine Nitrites    Neg    Neg-       
Urine Protein    Trace    Neg-       A
Urine Glucose    Neg    1-15      
Urine Ketones    Neg    Neg-       
Urine Urobilinogen    1.0    0.1-1.0 EU/dL    
Urine Bilirubin    Neg    Neg-       
Urine Red Blood Cells    Trace    Neg-       A
Urine Microscopic Exam    Culture ordered     -       
Urine White Blood Cells    28    0-5 /(hpf)    H
Urine Red Blood Cells    4    0-2 /(hpf)    H
Urine Epithelial Cells    >100 Squamous epithelial     -  /(lpf)    
Urine Casts    10-25 Hyaline     -  /(lpf)    
Urine Bacteria    Few     -  /(hpf)    
Urine Mucous    Rare     -  /(lpf)
White Blood Cell Count     6.3     4.0-11.0 K/uL     
Red Blood Cell Count    3.85    3.90-5.40 M/uL    L
Hemoglobin    12.6    12.0-16.0 g/dL    
Hematocrit    37.2    36.0-47.0 %    
MCV    97    80-100 fL    
MCH    32.7    27.0-33.0 pg    
MCHC    33.9    32.0-36.0 g/dL    
RDW    11.9    11.5-15.0 %    
Platelet Count    236    150-400 K/uL
Component Results
Component            Your Value    Standard Range    Flag
Prothrombin Time    12.9    11.9-14.1 sec    
INR    1.0    0.9-1.1  
Component Results
Component            Your Value    Standard Range    Flag
PTT    29.1    22.0-34.0 sec    
General Information
Collected:

10/23/2008 1:49 PM
Resulted:

10/23/2008 4:23 PM
Previous Result Next Result
Component Results
Component            Your Value    Standard Range    Flag
Sodium    136    135-145 mmol/L    
Potassium    4.1    3.5-5.1 mmol/L    
Chloride    97    98-107 mmol/L    L
CO2    29    21-32 mmol/L    
Glucose    111    70-100 mg/dL    H<~~~what causes glucose to be high?
BUN    12    7-18.0 mg/dL    
Creatinine    1.2    0.6-1.3 mg/dL    
GFR - Other    51    >60-  mL/min    L<~~~still has not changed
GFR-African American    >60    >60-  mL/min    
Calcium    9.4    8.5-10.1 mg/dL    
Total Protein    7.6    6.4-8.2 g/dL    
Albumin    4.2    3.4-5.0 g/dL    
Total Bilirubin    0.1    <1.1-  mg/dL    
Alkaline Phosphatase    121    50-136 U/L    
AST    27    15-37 U/L    
ALT    39    30-65 U/L    
General Information
Collected:

10/23/2008 1:49 PM
Resulted:

10/23/2008 6:02 PM
Ordered By:

Gerald Mckinsey PA
Result Status:

Final result

[Adminஐﻬ]

girls,
my back is totally killing me. I went to lay down aroun 7 pm last night.
Up most of the night taking pain meds.
AS I type this damn Dystonia is rearing it's ugly head. That means I'm going to take a valium right now!
OK just swallowed half which is 5 mg.

If I don't answer personal emails or posts directed at me for the first half of the day it's because I'm laying down with heat. In fact I need to get a second heating pad going get it ready for my face.

30 min ago I warmed up a rice sock for my spine so I could sit here answer emails and such.
I went to go remove the heating pad and guess what door I opened?
The freezer.
 I'm not here today.
In spirit I'm here but I'vee been stressing myself out over that damn Cardiologist's remark "you need this surgery again you don't come see me, I won't work on you"

So I was online this morning looking up our state board and how to make a complaint.
I'm sure it's the reason the facial muscles are pulling. Stress or cold air brings on an attack.
OK I just got the other rice sock warmed up.
I'
ll be signed in and leave the computer on while I lay down let the warmth and the meds do their thing.

I want to post to other posts but I'll have to do that later.
OH! Kimmy/Tesa/Clare if you are reading I'll have my phone ringer turned off so I can get the muscles to relax. I'll be OK once I get them to relax
I hate my body right now and it's not even Lupus related going on.

[Adminஐﻬ]

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MHA CATH LAB

Click for general information about MHA CATH LABAbout This Test
If you have questions or concerns regarding your test results, contact the provider who ordered the test.

While various diseases and conditions may be discussed in an imaging report, this does not indicate a disease is present. An imaging report may describe common variations of normal anatomy, as well as possible disease, and can only be interpreted in the context of a patient's medical history, examination, and other test results. Your physician will contact you to discuss any notable findings.    
 
Test:    MHA CATH LAB    
Resulted Date:    10/30/2008    Status:    Final Result    
Transcription:
 
 
 
HOSPITAL NAME: Memorial Hospital Association<BR>    
 
                        CARDIAC CATHETERIZATION REPORT<BR>    
 
DATE OF STUDY<BR>    
10/30/2008<BR>    
 
PROCEDURE PERFORMED<BR>    
1.       Aortogram with runoff.<BR>    
2.       Supervision and interpretation of angiographic data.<BR>    
3.       Balloon angioplasty to the in-stent restenosis in the right common<BR>    
         iliac artery.<BR>    
 
INDICATIONS FOR PROCEDURE <BR>    
The patient had previous stenting of the right common iliac artery. It became<BR>    
occluded, and reperfusion was performed with a second stent overlying the<BR>    
previous one in the right common iliac artery. The patient had recurrence of<BR>    
claudication and was admitted for aortogram with runoff.<BR>    
 
DESCRIPTION OF PROCEDURE<BR>    
The patient was taken to the cardiac catheterization laboratory in the<BR>    
postprandial state on 10/30/2008. Consent was obtained. Both groins were<BR>    
prepared using standard sterile prepping and draping. One percent lidocaine<BR>    
was infiltrated over the left groin for local anesthesia. Using the Seldinger<BR>    
technique, the left common femoral artery was entered and a 5-French sheath<BR>    
was placed into that vessel.<BR>    
 
A 4-French pigtail catheter was then advanced into the descending aorta.<BR>    
Digital subtraction was performed. The descending aorta showed mild stenosis<BR>    
infrarenally. The renal arteries are normal bilaterally. The descending aorta<BR>    
divides into both common iliac arteries.<BR>    
 
The right common iliac artery showed two &quot;bandage&quot; metallic stents within it.<BR>    
At the proximal part of the stented area, there was a focal 90% stenosis. The<BR>    
rest of the right iliac system, including the right external iliac and<BR>    
internal iliac arteries are normal.<BR>    
 
On the left side, the left common iliac, external and internal iliac arteries<BR>    
are normal. <BR>    
 
Both common femoral arteries, superficial femoral arteries and profunda<BR>    
arteries are normal. Both popliteal arteries are normal. The tibioperoneal<BR>    
trunks bilaterally were normal. Both anterior and posterior tibial arteries<BR>    
were patent and filled to the ankles. Both peroneal arteries are not well<BR>    
seen. <BR>    
It appears that the patient's main problem is related to high-grade restenosis<BR>    
focally in the stented area at the proximal part of the right common iliac<BR>    
artery. Balloon angioplasty is indicated.<BR>    
 
Using the similar Seldinger technique, the right common femoral artery was<BR>    
entered and a 6-French sheath was placed into that vessel. Intravenous<BR>    
AngioMax was initiated. The steerable guidewire used was a 0.035 angled<BR>    
Glidewire. This was able to advance into the right common iliac artery,<BR>    
crossing the lesion and positioned distally. Balloon dilatation was then<BR>    
performed using a 7.0 x 20-mm peripheral balloon. Inflations were made with<BR>    
pressure up to 12 atmospheres. Residual stenosis was excellent, about 20%.<BR>    
Flow down the distal vessel was normal.<BR>    
 
After the procedure, the patient was sent to the recovery area. The sheaths in<BR>    
both groins were pulled out and hemostasis was obtained with pressure over<BR>    
both groin areas.<BR>    
 
No complications occurred. <BR>    
 
CONCLUSION<BR>    
High-grade in-stent restenosis in the proximal part of the right common iliac<BR>    
artery. There were two &quot;bandage&quot; stents in that area. The 90% lesion was<BR>    
treated with balloon angioplasty, with residual stenosis of zero percent. No<BR>    
complications occurred.<BR>    
 
 
 
 
PETER LAI, MD<BR>    
 
D:  11/04/2008 01:28:43 EST<BR>    
J:  1110214<BR>    
E:  11/04/2008/sam <BR>

[Songofhearts]

[size=1wpt]

Miss Chatty Kathy,
A little bunny (me) snuck in to check on things both in the OR and recovery area.  I was indeed quite pleased with how things went.  I sprinkled my magic fairie dust, found only in the cabbage patches of Ireland.... yes, only there... and I sprinkled that special dust upon your groins, your arteries, upon the drs and nurses and upon you, m'dear as you were sleeping...  It all jolted me back to reality a bit too soon   
BUT, I left enough prayers there to keep yo covered... like a baby in a blanket....       

Oh, Kat,
We are all thinking of you and praying for you and hoping you will recover quickly but that you will also be reallly  REALLLLYYYY good to yourself as you heal.  We'll all   be fine.  If you and your DH need to sneak out and go watch the crashing waves of the ocean at Montery or Carmel... then I don't think you'll hear a compliaint or  a peep from any of us.  In fact, it would make us feel espially good@@@

Sure do love you.   Here's  to hoping and PrAYING that all will heal well and that this will solve many of older  issues.j

I love you girl.  Hang in there.  Let the meds do their thing while they can and when they can.

We will all still  be here, all fine and dandy and full of the dickens.... so sleep while you can, rest, take your spot of herbal tea and heal......

Don't know if Angel got a chance to write that she was at the hospital again.  I am glad as it seems they are finally taken better notice of all her "weird" smptoms and such.

Love to you!   Am bakin you a batch of cybo cookies to help you feal fser and feel better.

        


All my love,
Holly [/size]

[Adminஐﻬ]

[size=1wpt]

Miss Chatty Kathy,
A little bunny (me) snuck in to check on things both in the OR and recovery area.  I was indeed quite pleased with how things went.  I sprinkled my magic fairie dust, found only in the cabbage patches of Ireland.... yes, only there... and I sprinkled that special dust upon your groins, your arteries, upon the drs and nurses and upon you, m'dear as you were sleeping...  It all jolted me back to reality a bit too soon   
BUT, I left enough prayers there to keep yo covered... like a baby in a blanket....      

Oh, Kat,
We are all thinking of you and praying for you and hoping you will recover quickly but that you will also be reallly  REALLLLYYYY good to yourself as you heal.  We'll all   be fine.  If you and your DH need to sneak out and go watch the crashing waves of the ocean at Montery or Carmel... then I don't think you'll hear a compliaint or  a peep from any of us.  In fact, it would make us feel espially good@@@

Sure do love you.   Here's  to hoping and PrAYING that all will heal well and that this will solve many of older  issues.j

I love you girl.  Hang in there.  Let the meds do their thing while they can and when they can.

We will all still  be here, all fine and dandy and full of the dickens.... so sleep while you can, rest, take your spot of herbal tea and heal......

Don't know if Angel got a chance to write that she was at the hospital again.  I am glad as it seems they are finally taken better notice of all her "weird" smptoms and such.

Love to you!   Am bakin you a batch of cybo cookies to help you feal fser and feel better.

        


All my love,
Holly [/size]

Bless your heart Holly,
I wished we could of went to Monterrey in August when it's so hot here in the valley.I have Yosemite to look forward to with the Lupus ladies next year (if I don't get to go anywhere till next year)

It would be nice if you could be out here early November next year for 3 days and 2 nights.
Andrea (Malfina and her Mom are attending), Kimmy, Me, Tesa is saving $$, I invited Geoff from Autrailia as he'll be in the states promoting his book on his bike ride last year from NYC to California and back to NYC.
But it's too soon to tell right now as it's hard enough on him planning his speaking gigs and book selling.
Then we have Tyler who discovered 20+ yrs ago SLE/Tissue Catabolisim who we'd love to meet and listen to him.
I'm sure next year we'll have a more difinate head count.
It sure would be nice if you came up with Angel
<, >
Love ya,
Me

[Songofhearts]

Oh HECK YA,
It would be great and I would love to come with Angel.   

It sounds nice to have some testosterone around here too.  WE NEED IT@@@


sure love you and hope you are doing okay.  I had a set back toinght, was pretty funny... these hallucinations, but I don't like them either.
Talke to you more later,
love, Holly

[Adminஐﻬ]

QUESTION: Is anyone on LIPITOR and had weird reaction that you would not think was related to it? Such as hallucinations, muscles that cramp at such a high intensity level it's unreal.
Smacking of lips, ears hear sound 6x the level of normal, no deep sounds only hear higher pitch sounds, eye pain, etc?

I had a HORRIBLE experiance last night after being on Lipitor for about a month.

Has anyone on Lipitor closed their eyes see a bright white circle? Then in the middle of this circle is a sillhoute <sp> in dark yet you can tell what it is. EXAMPLE: Civil War men, it flashes to another "picture" a white picket fence, a heart picture as shown in medical books, a loaf a bread with a knife next to it, I could go on & on.

I Googled "Lipitor, bad reactions" and got this
http://money.cnn.com/2006/06/08/news/companies/lipitor/index.htm

I haven't been the only one that went through this.
This past summer my husband did and I thought it was his anti depressant causing it.
So Dr. increased it.
It made his arms more heavier feeling and could not lift them up.
At night he'd go through what I described above.
But last night, I went through it. I actually had him get my card out that shows what meds I'm on and asked him to call 911 get me an ambulance. I won't be able to walk and have you get me to the hospital. I need to stay laying down.
Instead he sat here next to my bed, brought me hot packs for the intense muscle twisting going down my spine, and left leg.
Then my shoulders felt like they "fell off me, disconnected no longer on my body". Crying spells (could be because I was so scared) I was still crying this morning.

More went on but Dave kept talking to me, trying to warm up my hands that were ice cold and at the same time put cold wet wash cloths on the back of my neck.
I'd like to hear from anyone who has experienced this while taking LIPITOR for high cholesterol.
I had no control whatsoever with my body or mind.

I wouldn't wish this on anyone.
Kathy

[chiara38]

I am sorry you are going through such intense experiences Katsu....I undrestand muscle cramps as I get them a lot especially on my right side where I am worse..they are lie oe big charlie Horse from head to toe on the one side..or exfruciating psin in the knee where you cannot stand but I have never taken Lipitor so I DO not Know..so kick me out of the post>>I simply wanted to say how sowwy I waz that mygood friend, sister of my heart is going through such horrible stress on her body...
sending you prayers>>hugs..your ..one flew over the cuckoos nest... girl... Love Clare

[Adminஐﻬ]

I am sorry you are going through such intense experiences Katsu....I undrestand muscle cramps as I get them a lot especially on my right side where I am worse..they are lie oe big charlie Horse from head to toe on the one side..or exfruciating psin in the knee where you cannot stand but I have never taken Lipitor so I DO not Know..so kick me out of the post>>I simply wanted to say how sowwy I waz that mygood friend, sister of my heart is going through such horrible stress on her body...
sending you prayers>>hugs..your ..one flew over the cuckoos nest... girl... Love Clare

THank you Clare, as soon as I quit taking them and my Soma muscle relaxers the hallucinations went away.Dave told me to start taking his Valiums when I get the muscle spasms since my Dr. won't allow no more Soma (he says they are addicting yet they worked fine for me) Till that one night.
Oh boy, I was so scared. It felt like I was on bad drugs or drunker than a skunk
heck maybe both! But it was scarey.At least Dave knew what I was going through.

I'm officially done with my antibiotics but early in the mornings and when I lay down at night my lungs still rattle.
I guess I will start taking a Nebulizer treatment early in the day. Otherwise I'll be wired and can't sleep.

How warm is it in Florida?
I ask because it was so cold here our main water line broke (again) every heatwave we have or every cold spell I see the water bubbleing out of the ground right on the walkway.


My son is in his other friends wedding. I know they are going to tease him now he needs to get married. But Mikie feels like he needs to be around for me plus he likes to continue to collect his odd ball things. Like for Christmas he asked for an old parking meter and we also got him a real fire hydrant he doesn't know about.
He will use them as props in the truck shows he enters his trucks in. They give prizes and money to the best props/decorated area around your truck.
Since it's a 1962 Truck, he tries to make everything old.
I know he really wants a car tray from an old A&W resturant where you used to drive up and flip the switch to order. Your food would be brought out on a tray. Well it's that old tray he wants more than anything. We have the old time Coke Bottles and glasses for display he will put on the tray.
I'm still searching around locally before I go to Ebay.

If I don't email with you again,
Have a restful weekend.
Take care my Sister from FL.
Your Sister in heart from CA

[chiara38]

Hi Katsu....
I hope you are doing well today...I sent you an ecard from 123 yesterday when I got your message as I did not want to awaken yu...You sounded really exhausted....Did you get your pipes fixed?  ihope so..It sounds good that you will be taking treatments mid day...as much as I dislike medicines of another kind...besides natural...I think some do alleviate discomfort if nothing else and whatever the short luxury of relief...it is worth a side effect or two if they are bearable otherwise I try not to take them..Has your appetite improved?  I told Sir Goblin if I lived closer to both of you I would cook some jamaican chicken soup for both of you...
I am tired today also....I will check posts again later or email..maybe I will call but today is a bit busy doing some stuff and tired is every which way in my body..no breathing room from the pressure of pain radiating..i took 1 Lortab which is good with my Plaquenil...
I think it is nice that your son wants to hang around...He can take the ragging from his friends...it will make him look good for the single females in attendance..unless he takes the girl who came to your table for the turkey meal...
Well I pray all things go well today..I am going Katsu..may your day be as awesome as possible..hugs..take care everyone....So long..Clare

[♥ Butterfly Goddess ♥]

Hmm... I'd like to think that it was talking to me that gave him the confidence to even talk to any local girl, lol... but being so many miles away and never really having met face to face, who can say?  I still have that dream in the back of my head, where I was getting off a plane and he was meeting me- I was certainly coming out to visit him or you or both, lol... mind you, I don't dream about stuff like that often!  Just as I've been having dreams lately of walking through my little tourist trap (Old Sturbridge Village) during their holiday event- at night, with only the old candles to light the way- with some kind gentleman... never see his face but I feel safe & loved in this dream.  Nice to think about... and would you believe, as much as I went to OSV growing up, it still holds a place in my heart?  It didn't annoy me like it has other people that I went to school with.  Going there for the Village by Candlelight event would be my absolute dream right now!  Especially now that we've gotten some snow... they have a horse drawn sleigh!

But seriously, Momma, the fact that Mikie wants to help you out is a true blessing.  I just recently got the deadline lifted for me- the whole moving out- because my mom has to have some serious surgery next month and will be out of work for the rest of the winter.  Relieved, yes a bit, but another stress is added instead as it will be my sister & I shouldering the bulk of the burden here while she recovers.  She's got it scheduled for the day before her 30th wedding anniversary (January 13th) so we know that any celebrating will have to be before that.  That's a major milestone to hit, 30 years... and then 7 months later (almost a full 7 months lol) I'll turn 30! ACK!!!!!!

Please take care of yourself!
luvs ya bunches~

[Adminஐﻬ]

Hmm... I'd like to think that it was talking to me that gave him the confidence to even talk to any local girl, lol... but being so many miles away and never really having met face to face, who can say?  I still have that dream in the back of my head, where I was getting off a plane and he was meeting me- I was certainly coming out to visit him or you or both, lol... mind you, I don't dream about stuff like that often!  Just as I've been having dreams lately of walking through my little tourist trap (Old Sturbridge Village) during their holiday event- at night, with only the old candles to light the way- with some kind gentleman... never see his face but I feel safe & loved in this dream.  Nice to think about... and would you believe, as much as I went to OSV growing up, it still holds a place in my heart?  It didn't annoy me like it has other people that I went to school with.  Going there for the Village by Candlelight event would be my absolute dream right now!  Especially now that we've gotten some snow... they have a horse drawn sleigh!

But seriously, Momma, the fact that Mikie wants to help you out is a true blessing.  I just recently got the deadline lifted for me- the whole moving out- because my mom has to have some serious surgery next month and will be out of work for the rest of the winter.  Relieved, yes a bit, but another stress is added instead as it will be my sister & I shouldering the bulk of the burden here while she recovers.  She's got it scheduled for the day before her 30th wedding anniversary (January 13th) so we know that any celebrating will have to be before that.  That's a major milestone to hit, 30 years... and then 7 months later (almost a full 7 months lol) I'll turn 30! ACK!!!!!!

Please take care of yourself!
luvs ya bunches~

Hi Honey,
You know I wish I could pick who my son will marry, I just wished I could of controlled who my daughter married (Errrrr!) That's another story..
Sorry to hear your Momma is having surgery but it's good it buys you more living time at home.
My wedding anniversary is January 19, 1977. Jennifer was born the following year a week after our first wedding anniversary on Jan. 24, 1978.
Mikie you know was born the following year May 29, 1979, then you came into this world just slightly less than 2 months later.

If I don't talk/email with you before Christmas I want to wish you and your family a very happy one. I know Christmas is a special time for your shopping, singing and so forth. I hope your house is decorated and you are in the spirit like last year.
Love West Coast Momma

[Adminஐﻬ]

Hi Katsu....
I hope you are doing well today...I sent you an ecard from 123 yesterday when I got your message as I did not want to awaken yu...You sounded really exhausted....Did you get your pipes fixed?  ihope so..It sounds good that you will be taking treatments mid day...as much as I dislike medicines of another kind...besides natural...I think some do alleviate discomfort if nothing else and whatever the short luxury of relief...it is worth a side effect or two if they are bearable otherwise I try not to take them..Has your appetite improved?  I told Sir Goblin if I lived closer to both of you I would cook some jamaican chicken soup for both of you...
I am tired today also....I will check posts again later or email..maybe I will call but today is a bit busy doing some stuff and tired is every which way in my body..no breathing room from the pressure of pain radiating..i took 1 Lortab which is good with my Plaquenil...
I think it is nice that your son wants to hang around...He can take the ragging from his friends...it will make him look good for the single females in attendance..unless he takes the girl who came to your table for the turkey meal...
Well I pray all things go well today..I am going Katsu..may your day be as awesome as possible..hugs..take care everyone....So long..Clare

Sista CLaire,
I just answered your card you sent, except the part about did we get our broken water line fixed, no.
We just don't have much pressure and it's been brokened so many times before. It's still so wet, we'd have to plan to dig up the earth when it's dry out as you can't have water in the trench when you are laying the new pipe.
I need to see if the city allows us to go back to useing old metal pipes because this plastic stuff is worthless and it's a pain in the rear to have this done twice a year.

Well I hope you are resting. I was happy to read you walked the beach last night.
I'm off to make fudge .
Already made Rice Krispy Cookies, Chex Mix.
Next comes the peanut butter , chocolate chip cookies and sugar cookies

[Donnabelle]

Kat thank you for the phone call. I will call you back real soon. Love you my dear Kat.

[Adminஐﻬ]

Kat thank you for the phone call. I will call you back real soon. Love you my dear Kat.

Anytime my Donnabelle.
I'm always here.
Lupus doesn't allow me to go far.
Glad you popped in!
Miss you,
Kat

[Adminஐﻬ]

Tonight police were dispatched to my home by a mental health counselor who was speaking to me as I was telling her I just had a cigerette put out on my left knee by my husband because I refuse to leave the living room.
It wasn't till he was trying to break inside my bedroom to get to me she feared for my life.
She got the police here, after taking us apart, I told them if they take him to jail, he will kill me. He's told me for years, "you ever call the police your a dead woman"
Well I didn't call the police that lady did.
So in front of cops I was in fear.
The cops said well if you've lived 34 yrs together like this if we take him in he'll be back in 5-7 hours come mornng.
SO I agreed he stay where he always does in the living and I here inside my bedroom.

I have tried desperatly getting pictures of my injuries to my Drs office as they are aware of the abuse.
Unless I had a cd to burn the pics on and brought it to them, it's the only way.
So I am posting them here tonight, not to frighten anyone but to leave them up in event he damages my computer or I take off to Safe Haven there will be access to see my photos by the public who I might need to see them.
(Lawyers, Drs etc)
Below is where he put his cigerette out on my knee this evening ...
Top that with the black eyes, remote control down my throat, hair pulled out, bruises everywhere... I'm tired of it.

Please excuse me for doing this, but it's my only way I know of to protect myself to get these pictures available if he damages my computer.
God Bless all and have a safe and happy Thanksgiving
link http://s47.photobucket.com/albums/f195/LupusWebsite/Incidents/?action=view&current=be593ee1.pbw

[Adminஐﻬ]

Wishing you & your families a wonderful holiday.
Sadly, it is my last holiday here at my home as I prepare to leave.
I am havving anxiety and breathing problems whenever I go to my kitchen. I had to take one of his 5 mg anixty pills (Xanax)
I know I must give away all my posessions in order so he does not have them as he will distory them as he does now. (glasses, good clothing, etc.)

All I keep hearing from him is how rough the cops were at detaining him and searching him, how it hurt him having handcuffs on.
I asked "Did it hurt as much as a lit cigerette being put out on your skin?"
With that said "his temper started for me to shut the F* up or he;ll have 911 come arres t me.
In otherwords, go to your room and stay there. Which I am.
I have only had this computer to keep me alive. Being able to have a *normal* life helping others, giving to others, supporting everyone.
Now the tables are turned and I am turning to Safe Haven to help me.
To think my Cambridge Whos Who in the 2010 book, my Reverends license, my success on Blog Talk Radio and the Lupus sites, I am NOTHING to my husband.
I just need a one way ticket and start over in a more affordable state, preferably Indiana where there is a neice.
I have no other family.
I'm reaching out to all, please, don't ever go 34 or 3 years with someone who steals your items or destoys it. Especially your BIBLE! I am so angered by that. Now the food suppliy I stocked up for my own consumption and to get him removed from the home. Looks like it's all now HIS and I have to leave for my health.
But to leave my tiny 5 pound dog behind that he hates because he protects me form him.
I'm very sad. Just need to gaininner strength to move on from abuse, physically but it's the mental CONTROLLING  I can't deal with.
Sorry for a downer post.
I'm trying to find happiness on this holiday, and it's so sad, very sad. This is my home I must leave.
Please continue to carried onthe LupusMCTD baords.... one day I will get another computer. Even tho this one is a few months old.. I can't carry it with me.
Everyone be safe.. don't stay married for conviance. If he hit you once, he'll hit you again and again.
I love you all!
You've been the BESTEST FRIENDS and SUPPORTS of LupusMCTD!!!
Kathy

[Adminஐﻬ]

I am VERY disappointed the first time in 32 years of physical abuse the MPD did NOT make a case number but rather labeled the incident this week in which my husband PUT A LIT CIGERETTE out on my knee as a Officer TROCK said to mental health counselor, "security check and left it as "she's OK"

No Modesto Police, I am NOT OK.. I'm not OK with YOUR decision NOT to make a CASE report on this! How absurd!
When you asked me what you want done about the situation, I told YOU, "I'm not a cop, I've never called the cops before, I don't know what YOU do in situations like this!"
 
Husband is threatening me since you left that you told him to call 911 at anytime if I say anything wrong or to upset David.So instead of physically hurting me (see photos) to get me to go to my bedroom, he now uses "I'm calling 911 on you, get out of the living room, I don't want to see you"
So I am stuck alone in my bedroom, no access to food, but rather a phone and a computer.
A phone in which daily my mental health care providers call to check on me.

I am so angry my public system failed and they did not take photos of my knee.  THis is what they SHOULD of taken a photo of and MADE A REPORT ON! Not him knocking on my door trying to get into me!


This message to all women who are physically abused and mentally.. do not allow your local police dept. to fail you.
I plan on sending this link to where they can see and read for themselves,(their http://modestopolice.com & their http://twitter.com/ModestoPolice) this is how they handle domestic disputes.
Not to mention the National Domestic Hotline I call daily 1-800-799- SAFE as well as my mental health provider that has 24 hour free counseling.. so far only Mr. Walters has needed it, yet I call just to have someone on the other line TALK TO ME.... If I was strong I'd fight back!

INJURIES FROM AUGUST 2009 to PRESENT
There is more, on bruises but the files are too large to upload











NOTICE: Again I am sorry to use my own website for my voice to be heard on a subject that most of us do not discuss IF we have abuse in our lives. But I am so terribly upset, I asked for help but they say "I have to call them back out again?"
WHY NOT DO THE JOB CORRECT THE FIRST TIME?????
It was MY FIRST time having you here on abuse call.
And I didn't call you, our health care provider in Texas did who HEARD as a witness him being a NUT that I live with!
You arrive, you get the MANIPULATIVE /SOCIAOPATH side of David...
And YOU BELIEVED IN HIM....
How sad!
Next call might be my own murder.... betcha he never told you daily how many times he wants to kill me?
Or how he has stolen my own meds in the past and ground them up and put them into the sugar so it appears I OD on my own heart meds????
That is a SICK BASTARD. But I only have proof he has called our Dr to get refills at 2-3 places , then goes and picks up my meds. Then I find out online, I already had the same pills!
WHY IS MR. WALTERS PICKING UP MY OWN MEDS WHEN I HAD THEM REFILLED LAST WEEK AT ANOTHER STORE????
* his lie~"Oh they were cheaper than WalMart"
Sure, then WHERE ARE THE PILLS NOW YOU PICKED UP IF I'M HOLDING A 3 MONTH SUPPLY IN THIS HAND? Mind you, it's the same heart med he takes as well, Isobormide Mononitrate. <sp>

Officer, did my husband tell you about the *predictions that come to him about my impending death?*
"You will die from a long term med you take, your heart pill or your seizure pill (both are white like sugar by the way)"
He knocked that off after I busted him online with the mail order meds and the WalMart meds he picked up . Checking out the sugar with larger than usual clumps.

Recently my Tegratol level was HH.. yes marked double High. I am down to one only a day, my liver has TOO MUCH STORED! Was it normal? Or was it David putting my Tegratol into the sugar for coffee? I quit drinking coffee with sugar so I'm sure my Tegratol level will be fine now. I also quit eating cereal that requires sugar months ago.

I could go on & on with this nut job... how he talks of there is people jumping over the fences, they come every Thursday. He'll break plants to say "look they were outside my door"
Well if that's the case and your sleeping in your recliner right here with the sliding door open, why didn't they come on in and steal something or harm you? Why are they comeing back each week David, huh? Why haven't they stolen or broken into one of the vehicles?
AND WHY HAVEN'T YOU CALLED MPD??????
BECAUSE IT"S NOT TRUE! We have 6' tall fences and I put LOCKS on them and BELLS
He is a NUT case that watches FORENSIC FILES every NIGHT and makes sure I hear it as he turns it up loud.
He does not scare me.
His MENTAL HEALTH CONDITION DOES
I am saying more than I had planned to here, because really, I never have put it all out there for others to see.

He claims it's always me that makes he react.
We are all responsible for our behavior.
If he can't react normally but without threat and harm then he has problems. I can not be referred to by my own name, but rather what I call the *A B C's of filthy language*
I'm so tired of being belittled minute by minute and he will play out a sad sappy story, always involving his childhood and how bad it was.
GET OVER OVER DAVID!


I could go on with more.. but I am using this thread of mine as a diary as recommended by counselor

I put a stop to him making life & death decisions on my health care via a paper to remove him and place my children as the decision makers.
If he wants me out of his life so bad, GIVE ME A DIVORCE!